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- IF International Youth Group SBH: Reflecting and looking ahead
- IF Working Group on Ageing with SBH: Reflecting and looking ahead
- Celebrating 10 Years of IF’s Participation in the Bridge CRPD-SDGs Initiative
- Launch of Factsheet on Genetics and Neural Tube Defects
- IF Participates in the Inaugural Meeting of the WHO Disability Health Equity Network
- Reflecting on World Spina Bifida and Hydrocephalus Awareness Month 2025
- WSBHD25 Challenge Winner Announcement
- Towards a United Nations-Recognised WSBHD
- International Day of Older Persons 2025 – Celebrating Ageing with SBH
- Agenda | October Spina Bifida & Hydrocephalus Awareness Month
- Register for the 31st International Conference for Spina Bifida and Hydrocephalus Oct 15-17 2026
- Join us in celebrating the International Day of Older Persons 2025
- Youth camps for Spina Bifida and Hydrocephalus across borders
- International Youth Day 2025: Youth with SBH leading the way
- Get ready for International Youth Day 2025
- IF Annual Report 2024 is now available!
- EU Member States Issue Landmark Declaration on Disability Awareness
- Response to the WHO Consultation on the Assistive Products Priority List (APL)
- Proposal to host the IF 32nd International Conference on Spina Bifida and Hydrocephalus in 2028
- Strategic engagement with the Global Disability Inclusion Report
- Draft WHA Resolution on ‘Rare diseases: a global health priority for equity and inclusion’ is now approved
- WHA78: Accelerating Action on Micronutrient Deficiencies and Their Consequences, Including Spina Bifida
- We’re Hiring: Join the International Federation for Spina Bifida and Hydrocephalus!
- The Global Disability Summit 2025 Concludes
- Lessons Worth Sharing from the Bridge CRPD-SDGs ASEAN Training
- EU CRPD review: Stronger EU action required to advance disability rights
- International Women’s Day 2025 Webinar ‘Accelerate Action!’
- Strong commitments at the Global Disability Summit 2025
- The 2025 list of Countries for review by the CRPD Committee
- Leaving No One Behind in Montenegro
- Creating collaboration through the Clinical Patient Management System
- The Coalition in Support of the WHA Rare Diseases Resolution
- Election Time!
- Service Clubs in Action for Spina bifida
- Obituary Notice - Björn Ründström
- New peadiatric urological guidelines for children and adolescents with Spina Bifida
- IF Webinar: 'Prevention of Neural Tube Defects: Leaving No One Behind'
- Universal Health Coverage Day 2025
- Mental Health in Focus: A Call for Action
- Call for tenders: Web developers for IF website (Deadline: 15 December 2024)
- Successful 1st Euregional Youth Meeting organized by IF & Zonnebloem JONG
- Award of Excellence at the 30th International Conference on Spina Bifida and Hydrocephalus
- The Kuala Lumpur Declaration of the 30th International Conference on Spina Bifida and Hydrocephalus
- Bridging Gaps Together on World Spina Bifida and Hydrocephalus Day
- 30th International Conference on Spina Bifida and Hydrocephalus, Kuala Lumpur Malaysia
- The 30th International Conference Programme Book
- International Youth Day 2024: Mental Health Matters!
- The UN Committee Evaluation of Belarus, Belgium, Denmark, Netherlands and Ukraine
- Legal capacity: Personal choice and control
- How to include organisations of persons with disabilities in humanitarian action?
- Paralympics 2024
- Join the international UN Day of Charity!
- Get ready for the International Youth Day 2024
- IF Job Opportunities
- The 17th Session of the Conference of States Parties to the CRPD
- IF ANNUAL REPORT 2023 IS NOW AVAILABLE!
- VICTORIA SANDOVAL - ELECTED IF PRESIDENT
- One Year after the Adoption of the WHA76.19 Resolution
- WHA77 Side Event Congenital Anomalies and Universal Health: Leaving No One Behind
- IF meets WHO champions at the WHA77
- Meet & Greet: Youth & Ageing with SBH
- How is your association involved in the implementation of SDGs?
- Youth around the globe calls for disability-inclusive development!
- Donate Now - Youth calls for your support!
- New IF Statement on Technologies and Accessibility in Education
- In the Spotlight: Meet Cato & Jesper
- IF joined the #ZeroCon24
- 2024 kicks off with the World Folic Acid Awareness Week Webinar
- TACKLING MICRONUTRIENT MALNUTRITION IN A WARMING WORLD AT COP28
- IF Statement on Strengthening Rehabilitation in Health Systems for persons with Spina Bifida and Hydrocephalus
- IF Statement on Conflict and Humanitarian Crisis
- IF joins the 49th ICBDSR Annual Meeting
- World Spina Bifida and Hydrocephalus Day 2023 Conference: Accessibility for All!
- Youth Engagement during the SDG Summit 2023 at the UN in New York
- Proposal for Directive on European Disability Card has been Approved!
- IF IS LOOKING FOR A MEMBERS ENGAGEMENT AND COMMUNICATIONS OFFICER
- EU SURVEY STUDY: INVITATION FOR PARTICIPATION OF FAMILIES OF SBH ASSOCIATIONS
- IF Newsletter is out now
- COSP16 SIDE-EVENT SUCCESFULLY REACHED OUT TOGETHER
- IF ANNUAL REPORT 2022 IS NOW AVAILABLE!
- WHA76.19 Resolution
- Celebrating the WHA76 Resolution For Safe And Effective Food Fortification
- WHA76 Side Event - Accelerating Efforts for Preventing Micronutrient Deficiencies and their Consequences through Safe and Effective Food Fortification
- Youth Celebrates the Independent Living Day 2023
- IF's Webinar on Women and Disabilities in Conflict and Crisis : A Reflection
- FORTIFYING OUR FUTURE: COMING TOGETHER TO SUPPORT THE WORLD HEALTH ASSEMBLY RESOLUTION ON FOOD FORTIFICATION
- Fortifying our Future: Coming together to support the World Health Assembly Resolution on Food Fortification: Key Takeaways
- WHA Draft Resolution on Safe and Effective Food Fortification
- IF Report 'Ageing With Spina Bifida and Hydrocephalus: An Overview of Best Practices Around the World'
- IF Webinar 'Preventing Birth Defects and Saving Lives: Folic Acid-Preventable Spina Bifida, Anencephaly'
- Call to Action for a WHO Resolution on Prioritising Mandatory Food Fortification with Folic Acid
- World Folic Acid Awareness Week 2023
- Raise awareness on the International Days for Persons with Disabilities!
- World Spina Bifida and Hydrocephalus Day: Elevate Your Voice!
- Join the World Spina Bifida and Hydrocephalus Day 2022
- Get ready to elevate your voice on World Spina Bifida and Hydrocephalus Day 2022
- IF Statement: A call for a global action to reduce the prevalence of Neural Tube Defects worldwide
- THE INTERNATIONAL YOUTH SBH MEETING: INDEPENDENT LIVING IN YOUR EYES
- IF Webinar Learning from Experience: Strategic Advocacy for Primary Prevention
- GET READY FOR THE INTERNATIONAL YOUTH DAY 2022!
- CRPD Consultation on the draft guidelines for deinstitutionalization, including in emergencies
- WHO World Mental Health Report: Transforming Mental Health for All
- IF MEMBERS TRAINING: FROM LOCAL TO GLOBAL – HOW TO INFLUENCE INTERNATIONAL ACTIONS THROUGH NATIONAL ADVOCACY
- IF Annual Report 2021 is now available!
- WHA75 Side-event “ Folic Acid Fortification to Prevent Spina Bifida”
- Press Release: An urgent call to action published in The Lancet Global Health
- A WHA Resolution: Folic Acid Fortification to Prevent Spina Bifida
- CALL FOR ABSTRACTS - 29th International Conference on Spina Bifida & Hydrocephalus "Diverse Needs, Same Rights"
- MEET & GREET WITH VANGELIS KOUTALIANOS
- Get ready for the World Birth Defects Day 2022!
- Celebrate the International Women's Day on March 8th 2022!
- The World Folic Acid Awareness and Turning Points Webinar was a Success!
- INAUGURATION OF THE EUROPEAN COMMISSION DISABILITY PLATFORM
- 2022 WORLD FOLIC ACID AWARENESS WEEK STARTS TODAY!
- IF Statement on Mental, Physical and Sexual Health for Youth with SBH
- IF Report "Ageing with Spina Bifida and Hydrocephalus - Finding from Online Focus Group Discussions"
- IF Report “Mental Health Implications of COVID-19 on Youth with Spina Bifida and Hydrocephalus- an explorative survey conducted by the IF International Youth Group with SBH”
- IF Human Rights and Advocacy Training for Youth with SBH - Accessibility in Focus
- “Ageing Well with Spina Bifida and Hydrocephalus”
- World Folic Acid Awareness Week 2022
- E-collaboration between the IF International Youth Group and EDF Youth Committee to celebrate the European Day of Persons with Disabilities
- The International Day of Persons with Disabilities 2021
- The European Day of Persons with Disabilities 2021
- IF Statement on Multidisciplinary Care
- “Digital Escape Room - Unlock Your Rights”
- The World Spina Bifida and Hydrocephalus 2021 Conference
- “From Traditional to Digital – Unlock Your Digital Communication”
- The World Spina Bifida and Hydrocephalus Day Main Event
- IF statement on EU reporting to CRPD
- WSBHD21 side event “Digital Escape Room - Unlock Your Rights”
- WSBHD21 side-event “Ageing well with Spina Bifida and Hydrocephalus”
- WSBHD21 side-event ‘From Traditional to Digital - Unlock Your Digital Communication’
- THE INTERNATIONAL FEDERATION FOR SPINA BIFIDA AND HYDROCEPHALUS CONFERENCE ON MULTIDISCIPLINARY CARE
- World Mental Health Day - October 10th
- IF International Day of Older Persons
- World Spina Bifida and Hydrocephalus Day 2021
- Call for action! IF together with partners endorses the Call to Action to Protect the Right to Family Life and Prevent Institutionalisation for All Children
- Cato Lie Elected President of the International Federation for Spina Bifida and Hydrocephalus
- Obituary Notice
- IF General Meeting 2021
- CALL FOR ABSTRACTS - IF Multidisciplinary Care Conference
- THE FIRST IF'S SIBLINGS DAY WAS A SUCCESS!
- IF urges effective implementation of the European Union Strategy for the Rights of Persons with Disabilities
- First IF International Youth Group – Apply now!
- World Folic Acid Awareness Week 2021 was a success!
- Smarter Futures, an African way to promote food fortification to help prevent Neural Tube Defects.
- 2021 WORLD FOLIC ACID AWARENESS WEEK 9th - 15th January!
- IF congratulates the new UN Special Rapporteur on the Rights of Persons with Disabilities Professor Gerard Quinn and the new members of the CRPD Committee
- Reflections on the IF event on disability rights and sexual health
- IF position paper on the 2021-2027 Multiannual Financial Framework of the European Union.
- WORLD SPINA BIFIDA AND HYDROCEPHALUS DAY - The First Online Event 2020
- "IMAGINE, CREATE AND LIVE YOUR RIGHT!" Photo contest on human rights
- The Roadmap for the European Disability Rights Strategy 2021-2030 has been published.
- World Spina Bifida and Hydrocephalus Day 2020
- The Right to Health in the UNCRPD
- IF calls for equal treatment in employment for persons with disabilities in the EU
- Launch IF Report on Ageing with Spina Bifida and Hydrocephalus
- Getting ready for WSBHD20
- Survey closed - COVID-19: Impact on people with SBH
- SBH youth community takes part in the International Youth Day
- 'Chat with IF': last session of our online EU workshop
- IF Annual Report 2019 is now available
- WELCOME TO HILDUR, IF’S NEW EUROPEAN POLICY OFFICER!
- Ageing with SBH: key topic during the IF EU online workshop
- First online IF European workshop
- Welcome to Dr. Sylvia Roozen: new IF Secretary General
- Joint response to the UN Policy Brief
- UN policy brief for a disability-inclusive response to COVID-19
- New advocacy tools to promote the implementation of folic acid interventions
- Welcome to Veronica, IF's new Administration Officer!
- UN Special Rapporteur warns against ableism in medical and scientific practice
- IF is looking for a European Policy Officer
- Mourning the sudden loss of Irish disability advocate Frank Larkin
- COVID-19: testimonies from the SBH community
- How is the COVID-19 affecting the SBH community?
- International Women's Day 2020
- World Birth Defects Day 2020
- IF Membership Guide 2021
- Joint food fortification project among top 100 proposals for MacArthur $100M Grant
- We are recruiting an Administration Officer
- Looking for a new Secretary General at IF
- IF recommendations to the new European Commission 2019-2024
- Launch of the European Semester 2020: what about persons with disabilities?
- 2020 WORLD FOLIC ACID AWARENESS WEEK STARTS TODAY!
- Towards a new European Disability Strategy for 2020 - 2030
- Discussion on the next EU Disability Strategy at the European Parliament
- UN Human Rights Day: IF launches sexuality project resources
- IF calls on the EPSCO Council: a swift transposition of the Work-Life Balance Directive is needed!
- IF participation at the EDPD event in Brussels
- European Days of Persons with Disabilities 2019: launch of SkixAll guidelines
- World Toilet Day: experiences from the spina bifida community
- Share your opinion on the European Disability Strategy today
- Report IF EU Workshop in Ghent
- New members and Board members at IF
- WSBHD 2019 #TheFullPicture campaign
- Report on IF & ASBI International Youth Conference on Sexuality
- IF responds to UN Special Rapporteur questionnaire on bioethics and disability
- We call on the European Commission to move Disability Unit to the Secretariat-General
- IF analysis on the new European Commission
- IF joins EDF statement on passengers' rights
- REPORT ON 'MY RIGHTS' TRAINING IN ESTONIA
- Youth conference on sexuality coming soon!
- 2019 World Spina Bifida & Hydrocephalus Day: 'The Full Picture' campaign
- IF survey on ageing available in 12 languages!
- IF represented at the EPF STYPA!
- UK consultation on proposal to introduce mandatory fortification of flour with folic acid
- Joint statement on the Right to Family of children without parental care
- IF joins Global WHO Birth Defects Technical Working Group
- IF presents its Annual Report 2018
- Applications now open for IF's 4th "My Rights" Youth Training
- IF Survey: What does ageing with SBH mean to you?
- IF advocates for birth registration at 12th COSP
- Work-Life Balance Directive adopted by the Council of the European Union
- Open Letter on the violation of the rights of young people with disabilities in institutional care
- Universal Health Coverage: Including Rare Diseases to leave no one behind
- IF response to UN Special Rapporteur: key role of medical education
- Folic acid, human rights and sexuality among the topics at IF EU workshop in Belgrade
- IF Secretary General re-elected in EURORDIS Board of Directors
- 'Ski For All' guidelines for inclusion and independence
- Welcome to Athina, IF's new European Policy Officer!
- IF submission on the rights of older persons with disabilities
- Former Norwegian Minister and disability advocate Guro Fjellanger has passed away
- 'SKI for ALL' project by ASBI
- World Health Day 2019: we need Universal Health Coverage!
- ‘They Give Him a Chance’: a new study on inclusive primary education in Uganda
- EU Parliament approves the European Accessibility Act
- Elena designated Director of the National Observatory of Disability
- Folic acid distribution in schools in Uganda
- Open Letter to the EPSCO Council
- European Elections 2019: why it is important to vote
- #ShowYourRare for Rare Disease Day 2019!
- IF Secretary General advocates for rare diseases at UN
- World Birth Defects Day 2019 Toolkit
- IF, HKI, and FFI renew the Smarter Futures partnership with Nouryon
- IF Prevention Consultancy Clinic
- Survey on pregnancy outcomes in women with spina bifida
- Ege Anli presents on advocacy and independent living
- Sexuality and disability should not be a taboo
- WFAAW Call to action!
- IF at the European Day of Persons with Disabilities 2018
- Webinar on nutrition, birth defects, food fortification and advocacy
- IF workshop in Madrid
- Accessible toilets are a human right
- "Saving Kidneys" training in Ukraine
- Family Care for Children with Disabilities
- Open letter on the EU Work-life balance Directive
- In Memoriam: Thomas (Tom) Edmund Baroch, disability advocate
- Mirela Bukovac at the Eurochild Conference 2018
- The IF Global Prevention Initiative celebrates 2nd anniversary
- Guidelines for the care of people with spina bifida
- Raising the voices of people with spina bifida and hydrocephalus
- Report of the Special Rapporteur on the rights of persons with disabilities
- Final report on 'My Rights' training
- IF expert Steven Schiff wins award for research on preventing infections
- World Mental Health Day
- "My Rights" training in Lisbon
- We need a strong European Accessibility Act
- WSBHD18 social media toolkit
- Women's Health Wednesday
- IF's Bulgarian member at the CRPD Committee members
- Rebecca Alitsi, former IF fellow, co-facilitator at IDA’s workshop
- IF Award at the 28th International Conference on SBH in India!
- SBH Ireland launches The Fight of Our Lives film
- Update for WSBHD18
- IF's Annual Report 2017 is out now!
- UK hosts first ever Global Disability Summit
- IF’s statement at the 11th Conference of States Parties to the CRPD
- First woman with a disability elected for the UN CEDAW Committee
- Continence management high on the agenda at IF European Workshop in Bulgaria
- BethanyKids’ Mobile Clinic in Kenya helps thousands of children with disabilities
- Training in Uganda on the CRPD and SDGs for persons with disabilities
- Register now for the 28th International Conference on Spina Bifida and Hydrocephalus!
- Comic book features young woman with Spina Bifida
- Folate status in women and neural tube defect risk reduction
- IF expresses concerns in response to UNICEF Report: “Every Child ALIVE”
- IF response to the Special Rapporteur on the Rights of Persons with Disabilities
- IF joined the kick-off meeting of the SkiXAll camp
- Brain Awareness Week 2018
- International Women's Day: work-life balance for all!
- March 3 marks World Birth Defects Day 2018
- Are the SDGs implemented in your country? Contribute to Voluntary National Reviews!
- Countdown towards World Birth Defects Day!
- Join us for the IF 28th International Conference in New Delhi, India
- Work-life balance: end inequalities for families of people with spina bifida or hydrocephalus!
- IF ERN session: How can your association work with healthcare providers?
- IF application for 2018-2021 EU grant approved!
- Smarter Futures: food fortification to address malnutrition
- Comparing endoscopic treatment and shunting for infant Hydrocephalus in Uganda
- Join the IFGPI for 2018 World Folic Acid Awareness Week!
- Happy New Year
- 10.000 surgeries since 2011!
- Universal Health Coverage Day - leave no one behind!
- Joint statement on Work-Life-Balance Directive
- Towards mainstreaming disability in the EU
- IF European Workshop in Stockholm
- Workshop on a multidisciplinary health system in Zagreb
- African Workshop in Mombasa
- ICBD2017 highlights the importance of parents-patients organisations
- 15 years Food Fortification Initiative
- Spina bifida, human rights, and assistive technology
- IF Global Prevention Initiative's 1st anniversary!
- World Spina Bifida and Hydrocephalus Day 2017
- Join IF’s WSBHD Thunderclap Campaign!
- World Mental Health Day 2017
- Toolkit for World Spina Bifida and Hydrocephalus Day 2017
- Expanding the LATAM Spina Bifida and Hydrocephalus network into Ecuador
- Training for youth with disabilities on independent living skills, human rights and advocacy
- Two former IF Presidents reflect on the start of IF
- How to write project proposals and focus on mental health at IF EU workshop
- Accessibility Act Demonstration
- UN CRPD Advocacy Training Course for young people
- What's our next Turning Point? The Global Prevention Initiative!
- European IF members priorities: Independent living, right to life and ageing with spina bifida
- Co-organised Equality 2015 conference: improving care and prevention for Spina Bifida and Hydrocephalus
- European IF members discuss right to health and cross-border networking between associations
- From the new LATAM network for spina bifida and hydrocephalus: Genetic factors and social inclusion are fundamental worldwide!
- IF's 24th International Congress 2013: Unite & Share
- IF Workshop “Adults, and now?”
- IF Annual Conference 2012: Finding Our Way
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