12 June 2023

The International Federation for Spina Bifida and Hydrocephalus (IF) is fortunate to work with its passionate and dedicated members and partners around the world focussing on improving the lives of individuals with Spina Bifida and/or Hydrocephalus (SBH) and their families. Given the needs of our SBH community, optimalisation of limited resources is very important.

Here, in this annual report 2022, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted

The year 2022 was an active year with a special focus on advocacy towards Member States in support of a draft World Health Assembly resolution to promote safe and effective food fortification with folic acid. During the members training, the focus from local to global informed next steps as to how IF members can influence international actions through national advocacy.

Member meetings with presidents of IF member associations in the regions Africa, Americas, Asia-Pacific, and Europe were important events. Moreover, the members of the IF working groups on ageing, youth, women with SBH, and the working group on multidisciplinary care continued their activities in raising awareness on topics relevant to these groups. The members within these working groups conducted explorative studies, published reports and policy statements, organised opportunities to meet and share experiences, offered training opportunities, and participated as speakers at international events.

IF is extremely grateful for the continued support and active involvement of members and partners. We would like to sincerely thank all of our members and partners and all the others who supported our IF work. Including the chairs and standing committee members as well as our volunteers.

IF looks forward to unlocking potentials together with YOU and also make the next year 2023 a success!

Cato Lie, President
Dr Sylvia Roozen, Secretary General

Click below to read the full Annual Report 2022