Spina Bifida Hydrocephalus Scotland


Spina Bifida Hydrocephalus Scotland (SBH Scotland) provide a lifetime commitment of specialist support and information to all those affected by these complex disabilities including family members, carers and healthcare professionals. Created in 1965 by parents, for parents and their children, over 55 years later we’re now a national charity with individuals remaining at the heart of everything we do. SBH Scotland’s dedicated Support and Clinical Team work across Scotland to support over 3,500 individuals with a range of services including: a helpline, one-to-one support in homes and schools, combined clinics at hospitals, support and social groups, financial and benefits advice, play sessions and workshops. 

In order to be able to provide their services free of charge SBH Scotland has a small team of fundraisers tasked with raising £1 million annually. 

Our vision

Scotland’s voice for spina bifida, hydrocephalus and related conditions

“Spina Bifida Hydrocephalus Scotland seeks to increase public awareness and understanding of individuals with spina bifida and / or hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.”

Spina Bifida Hydrocephalus Scotland _ North family Conference, Bagaduish Outdoor Centre, Aviemore.