Description

SPINA Foundation was established to support children and adults with spina bifida, as well as their families, in everyday life. Our work focuses on improving quality of life, independence, and access to specialist support.

Through the SPINA Workshop, we have organized urotherapeutic, orthopedic, and psychological sessions tailored to the needs of our beneficiaries.

We engage children, adults, and families in a range of activities. In sports, we run summer camps where participants can try sailing, handbiking, sitting volleyball, and wheelchair fencing, as well as take part in mountain (Spingóry) and cycling trips.

In the social and artistic area, we organize regular meetings such as Klub bez Spiny and Spinbajtle, creating space for integration, creativity, and peer support among young people and children.

Education is another key pillar – each year we host conferences and workshops that bring together specialists, families, and individuals with spina bifida to share knowledge and experiences.

We also provide crisis intervention through the SOS for Spina Bifida Programme. It supports parents at the moment of diagnosis or shortly after a child’s birth. The programme builds a support network based on volunteers – adults with spina bifida and parents who share their experience and offer guidance.