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IF MEMBERS MEETING PEDIATRIC UROLOGICAL GUIDELINES SPINA BIFIDA

Description

IF MEMBERS MEETING PEDIATRIC UROLOGICAL GUIDELINES SPINA BIFIDA

Background

The spina bifida and hydrocephalus associations have been presented with a unique opportunity to directly influence the improvement of the European Association of Urology Paediatric Urology Guidelines for children with urological problems. 

This survey study is part of a broader collaboration between the International Federation for Spina Bifida and Hydrocephalus (IF) together with the European Association of Urology (EAU), ERN eUROGEN, and the ERN ITHACA.

It was a unique collaboration whereby we actively involved persons with spina bifida and/or hydrocephalus and their families to improve the existing guidelines in making them more patient centred. IF distributed this survey internationally for only a limited number of countries.

Follow-up Meeting

Following the completion of the survey, IF invites member associations along with their members to participate in a follow-up meeting to discuss the results and outcomes. 

Date: Thursday, 29 February 2024

Time: 3:00 – 4:00 PM CET

Registration required before February 25: https://us06web.zoom.us/meeting/register/tZYtfuCgqD8tGtw1-HUV3YLwop_1KpI5yunr 

This meeting will serve to learn more about the results as well as a moment to reflect on your experiences. Furthermore, the survey results will be published in a peer-reviewed scientific journal and presented during the upcoming IF 30th International Conference on Spina Bifida and Hydrocephalus. In this upcoming meeting translated captioning will be available for your convenience.

For any questions or inquiries regarding the survey, please reach out to us at [email protected]