A society that guarantees the human rights of all people born with Spina Bifida and Hydrocephalus and practices primary prevention of neural tube defects.
You are invited! Our champions on food fortification policies will offer their perspectives, and expert advice for a healthier, stronger, and smarter future for all.
Register to join the 31st International Conference on Spina Bifida & Hydrocephalus taking place in Montréal, Québec, Canada, on 15-17 October 2026.
A month of global engagement during which IF Members and partners organised various initiatives, highlighting the diverse experiences and aspirations of the Spina Bifida and Hydrocephalus community.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Tackling the primary prevention of neural tube defects (NTDs) and hydrocephalus as a united global community.
Fighting for access to affordable multidisciplinary healthcare for people with Spina Bifida and Hydrocephalus and their families.
Fostering inclusion, respect, and stronger rights for persons with Spina Bifida and Hydrocephalus through awareness-raising.
Established in 2011 to celebrate achievements and accelerate global action for Spina Bifida and Hydrocephalus.
Protecting human rights and promoting living with dignity, access to essential services, and full participation in society.
Building bridges and empowering national Spina Bifida and Hydrocephalus associations to advocate for our rights.
IF’s fast-growing membership now includes over 100 Spina Bifida and Hydrocephalus (SBH) associations in Africa, Australia, the Americas, Asia and Europe. Membership of IF is open to all nationally registered SBH associations that share IF’s vision and mission and actively involve people with SBH in their work. Organisations, institutions, companies and individuals with an interest in SBH and the aim to widen the extent of their activities are also welcome to apply for IF membership. Check out our Membership Guide to learn more!
Please note that this map also displays SBH associations that are not a member of IF. They are represented by a red dot. If you know of an SBH association not represented below, please email us at [email protected].
