WSBHD21 side-event “Ageing well with Spina Bifida and Hydrocephalus”

7 October 2021

The “Ageing well with Spina Bifida and Hydrocephalus” side-event organised, by the Working Group on Ageing, to celebrate with us the World Spina Bifida and Hydrocephalus Day 2021.

As every year, IF is looking forward to joining its Members and the SBH community to celebrate this important day. The barriers may vary between communities and individuals but the goal of advancing the right to health for all individuals with SBH remains the same. 

For this occasion, not only a main event will be organised to celebrate this important day with having as a main theme “Unlock Your Right to Health” but also a side-event organised by the IF Working Group on Ageing that will be held on October 27th at 3PM (CEST). 

Speakers from different regions will share their experience on different aspects such as the need for support networks; on multidisciplinary care and on physical health and rehabilitation.

Those testimonies will be followed by a discussion where participants can freely ask, without any taboo, questions and/or share their personal experiences.  

When? October 27th at 3PM – 4.30PM (CEST)

Where? Zoom online meeting 

Participants? Reserved for individuals with SBH – 18 years and older – and/or a family to an individual with SBH 

Registration link? https://bit.ly/WSBHD21Ageing

Draft Agenda 

Moderator: Kevin O’Donnell – IF Working on Ageing Chairman

Time (CEST): Sessions: Speakers:
3pm – 3.05pm Word of Welcome Kevin O’Donnell

IF Working Group on Ageing Chairman 

3.05pm – 3.10pm Sharing their experiences on the need for support networks in Australia Martin Duff

Perth, Australia 

3.10pm – 3.15pm Sharing his experience with multidisciplinary care in Belgium Mario Sel

Flemish Association for Spina Bifida and Hydrocephalus (VSH)

3.15pm – 3.20pm Sharing experiences on physical health and rehabilitation in the USA Monica Still

Spina Bifida Association

3.20pm – 3.25pm Sharing his experience on Mental Health among persons with SBH Kevin O’Donnell

Spina Bifida Hydrocephalus Scotland

3.25pm – 3.30pm Sharing her experience with a Holistic Approach to Physical Rehabilitation Judy Feeley

Hydrocephalus Canada Member and Hydrocephalus Association Member

3.30pm – 4.15pm Discussion All participants
4.15pm – 4.30pm Closing words Kevin O’Donnell

IF Working Group on Ageing Chairman

Join the IF Working Group on Ageing and share your view and perspective on ageing with SBH!

See you there! 

IF is looking forward to seeing your participation during the “Ageing well with Spina Bifida and Hydrocephalus” side-event!

If you have any questions please contact [email protected].