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This IF Members Training will strengthen the capacity of persons with SBH to speak up for their rights, influence change, and represent their communities locally and globally. Through peer-led sessions, interactive discussions, and real-life examples, participants will gain tools to become confident advocates for inclusion and human rights.

On 22 October 2025, the Asia-Pacific region will gather virtually for the World Spina Bifida and Hydrocephalus Day (WSBHD25) celebration through a dedicated Regional Side Event. This webinar will bring together regional experts, healthcare professionals, and advocates to share progress, highlight challenges, and explore collaborative strategies to strengthen the prevention and care of Spina Bifida and Hydrocephalus (SBH) across Asia-Pacific Region. 

On 22 October 2025, the African region will come together to mark World Spina Bifida and Hydrocephalus Day (WSBHD25) through a dynamic Regional Side Event. This regional gathering will spotlight the power of community engagement, innovation, and advocacy in advancing the prevention of Spina Bifida and Hydrocephalus (SBH) across Africa.

As part of the World Spina Bifida and Hydrocephalus awareness month, IF is hosting a webinar named 'Inclusive Employment and Skills for Life'. The webinar will bring together voices from the SBH community as well as advocates and experts working on inclusive employment policies.

On 25 October, the World Spina Bifida and Hydrocephalus Day Conference will once again bring together advocates, health professionals, researchers, and policymakers from around the world. This year’s event will explore how we - together with you - can accelerate action to close persistent gaps and strengthen the global SBH community.

On October 1, the IF Working Group on Ageing with SBH highlighted the experiences of ageing with SBH emphasizing empowerment, independence, and inclusion across all life stages. Speakers shared inspiring stories of perseverance, dreams, and creativity, showing that with support and determination, people with SBH can lead meaningful, fulfilling lives.