9 October 2026
On 8 October 2026, our International Adult Working Group SBH marked the United Nations International Day of Older Persons (IDOP) and the World Mental Health Day (WMHD), supported by WHO, by hosting the IFSBH webinar named “Mental Health and Wellbeing in the Global SBH Community”. The webinar brought together adult advocates, youth advocates, healthcare professionals and members of our global SBHcommunity to explore the lifelong journey of mental wellness. Our panel shared personal stories, broke down stigmas, and highlighted practical ways to nurture mental health at every stage of life with SBH, with a special focus on adults living with SBH. At the same time, the audience had the opportunity to engage with the panelists, asking insightful questions. It was a chance to connect, learn, and grow stronger together as a worldwide SBH community.
22 September 2026
IF Members in Chile and Slovakia brought the experiences and priorities of people with Spina Bifida and Hydrocephalus to the UN Committee on the Rights of Persons with Disabilities during its 35th Session.
17 September 2026
IF is proud to introduce Living with SBH – Stories of Lived Experiences, new collection of personal stories from the global spina bifida and hydrocephalus community developped with the IF International Adult Working Group SBH.
15 September 2026
It is with profound sadness that the International Federation for Spina Bifida and Hydrocephalus announces the passing of our President, Victoria Sandoval Cáceres de Lara, who passed away last week in Guatemala.
7 September 2026
As Ireland places Assistive Technology among its priorities during its Presidency of the Council of the European Union, the International Federation for Spina Bifida and Hydrocephalus (IFSBH) is calling for catheters and other continence management products to be recognised and included in European discussions on Assistive Technology.
31 August 2026
A new collaborative study involving IF and the European Association of Urology–European Society for Pediatric Urology (EAU–ESPU) Paediatric Urology Guidelines Panel has been published in Neurourology and Urodynamics.
12 August 2026
On 12 August 2026, the IF International Youth Group SBH marked United Nations International Youth Day by hosting the webinar "Inclusive Pathways: Education & Employment for Youth". The event brought together young advocates, adult advocates, professionals and members of the global SBH community to explore how inclusive education and meaningful employment can empower young people with disabilities to reach their full potential.
1 August 2026
Since launching the SBH Health Equity Project earlier this year, the International Federation for Spina Bifida and Hydrocephalus (IF) has continued working with members and the wider SBH community to better understand barriers to equitable healthcare and identify opportunities for change.
2 July 2026
Twenty years after the adoption of the CRPD, IF's latest publication explores why health equity is essential to achieving inclusion and ensuring the rights of persons living with spina bifida and hydrocephalus.
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