Latest news

IF is expanding its team! We are currently looking for three passionate and skilled professionals in communications, project management and EU policy to support our growing international programmes.

IF was pleased to take part in the inaugural meeting of the WHO Disability Health Equity Network, launched in November 2025. The Network brings together global stakeholders committed to advancing the WHO Disability Health Equity Initiative and strengthening coordinated action to address health inequities faced by persons with disabilities.

Every October, the global Spina Bifida and Hydrocephalus (SBH) community comes together to raise awareness, share experiences, and strengthen our collective voice. This year’s theme ‘Accelerate Action for Spina Bifida and Hydrocephalus’ (#Action4SBH) inspired a powerful global movement of advocacy, creativity, and solidarity.

On December 3, the International Day of Persons with Disabilities, IF invites you to join a global webinar: ‘Building Bridges: How Service Clubs Can Drive Change for Persons with Disabilities’.This event will highlight how Rotary, Lions, Kiwanis, and other service networks are advancing equality and empowerment through community action and collaboration.

We are delighted to announce that this year’s WSBHD25 Challenge Winner is Fekadu Yadessa, whose entry received over 800 likes, comments, and shares across IF’s social media platforms (Facebook, Instagram, and LinkedIn). Through his powerful message, Fekadu called for #Action4SBH on prevention through food fortification with folic acid in Ethiopia.

Today we celebrate World Spina Bifida and Hydrocephalus Day. This policy brief calls for its recognition as an official United Nations International Day to raise global awareness, promote prevention through folic acid fortification, and advocate for inclusive policies and lifelong care. Such recognition would unite governments, civil society, and communities worldwide in advancing dignity, equity, and opportunity for all people living with spina bifida and hydrocephalus.