Latest news

National SBH Associations play a key role in monitoring the implementation of the UNCRPD! You can learn more about this process in the IF Information Package on the UNCRPD and the reporting cycle. Check the agenda to see which countries come for review by the CRPD Committee in 2025.

Being a UN member and having an EU candidate status made Montenegro ratify numerous international treaties in the area of human rights, and some progress towards the improvement of disability rights was made. However, as it happens sometimes, political processes are strongly influencing the realisation of human rights, and the Montenegrin case was not an exception.

The Clinical Patient Management System, or CPMS for short, is a secure web-based tool via which allows multidisciplinary teams of experts across the European Union to discuss individual cases involving rare or low prevalence complex diseases or conditions.

IF has recently joined the Rare Diseases International Coalition in support of the adoption of the WHA Resolution on Rare Diseases, which will be discussed at the World Health Assembly (WHA) in May 2025.

The International Federation for Spina Bifida and Hydrocephalus (IF) is looking for a board member in preparation for the upcoming elections scheduled for June 2024.

Today, on Rotary's 120th anniversary, we are happy to launch the publication 'Service Clubs in Action for Spina Bifida: Prevention and Care'. This publication aims to explore our common vision of a fruitful future collaboration, building on the already existing strong partnerships between Service Clubs and people with Spina Bifida and Hydrocephalus (SBH) and their families that go back decades.