17 January 2026
This week in Bangkok, Thailand, IF President is taking part in the International Disability Alliance (IDA) General Assembly, a key global forum for advancing the rights of persons with disabilities.
12 January 2026
Published in Frontiers in Public Health, this article examines the impact of mandatory staple food fortification with folic acid in the Eastern Mediterranean Region and forms part of a collaboration between IF and the WHO EMRO.
6 January 2026
On 6 January 2026, IF, through its Global Prevention Initiative, hosted a regional webinar titled “Partnering for Impact: Advancing Folic Acid Food Fortification in Latin America”.
22 November 2025
2025 has been a powerful reminder of the importance of youth leadership and global solidarity among young people living with SBH. As the Youth Group, we dedicated our efforts to understanding and amplifying the voices of our community, especially around mental health, identity, and disability acceptance.
21 November 2025
As the year comes to an end, we take the opportunity to reflect on our various achievements and the exciting activities that the IF Working Group on Ageing with SBH carried out during 2025.
20 November 2025
In October 2025, IF marked 10 years of active engagement in the Bridge CRPD–SDGs initiative with a special anniversary meeting held in Bangkok.
18 November 2025
We are excited to release the first factsheet of its kind exploring the role of genetics in Neural Tube Defects (NTDs). This resource has been created to provide clear, accessible information for families, healthcare professionals, and anyone interested in understanding how genetics can influence NTDs.
15 November 2025
IF Secretary General, Dr Sylvia Roozen, joined the inaugural meeting of the WHO Disability Health Equity Network in Geneva, Switzerland.
13 November 2025
Every October, the global Spina Bifida and Hydrocephalus (SBH) community comes together to raise awareness, share experiences, and strengthen our collective voice. This year’s theme ‘Accelerate Action for Spina Bifida and Hydrocephalus’ (#Action4SBH) inspired a powerful global movement of advocacy, creativity, and solidarity.
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