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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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International Women’s Day 2026 Webinar: Advancing the Rights of Women and Girls with Disabilities

IF hosted its International Women’s Day webinar, bringing together women with disabilities, advocates, policy-makers, and allies from around the world. Guided by the UN theme “Rights. Justice. Action. For ALL Women and Girls”, the event offered a global platform to amplify lived experiences, explore systemic barriers, and showcase solutions for meaningful inclusion.

IF Members Meeting: SBH Associations in Latin America Strengthen Regional Collaboration

IF hosted the first LATAM SBH Associations Meeting of the year, bringing together representatives from member organisations across Latin America. Participants joined from Guatemala, Argentina, Colombia, Chile, Paraguay, and Ecuador, alongside IF representatives, to exchange updates, share experiences, and explore opportunities for collaboration within the region.

The United Nations Committee on the Rights of Persons with Disabilities Opens its 34th Session

The 34th session of the UN Committee on the Rights of Persons with Disabilities is underway. Learn how SBH Associations can participate, submit shadow reports, and help shape disability rights implementation in their countries.

IF Opens 2026 with First Members Gathering, Setting Global Priorities.

IF held its first Members Meeting of 2026 on 24 February, welcoming 43 members from across its global network. The meeting offered a platform to reflect on 2025 achievements, share national initiatives, and define priorities for the year ahead.

Shaping the Future: IF’s Response to the EU Disability Strategy 2030 Consultation

The European Commission is reviewing and strengthening the EU Strategy for the Rights of Persons with Disabilities, looking ahead to 2030. This is a unique opportunity for persons with disabilities, their families, and organisations like ours to shape the policies that affect our lives.

IF President participates in IDA's General Assembly in Bangkok

This week in Bangkok, Thailand, IF President is taking part in the International Disability Alliance (IDA) General Assembly, a key global forum for advancing the rights of persons with disabilities.

Mandatory food fortification reduces NTDs in the Eastern Mediterranean Region

Published in Frontiers in Public Health, this article examines the impact of mandatory staple food fortification with folic acid in the Eastern Mediterranean Region and forms part of a collaboration between IF and the WHO EMRO.

Partnering for Impact: Advancing Folic Acid Food Fortification in Latin America

On 6 January 2026, IF, through its Global Prevention Initiative, hosted a regional webinar titled “Partnering for Impact: Advancing Folic Acid Food Fortification in Latin America”.

IF International Youth Group SBH: Reflecting and looking ahead

2025 has been a powerful reminder of the importance of youth leadership and global solidarity among young people living with SBH. As the Youth Group, we dedicated our efforts to understanding and amplifying the voices of our community, especially around mental health, identity, and disability acceptance.