Latest news

Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

Filter on:

244–252 of 322 results

Webinar on nutrition, birth defects, food fortification and advocacy

On December 4th, we will take part in an interactive webinar organized by the Folate Task Team focused on improved nutrition and how it can reduce the risk of neural tube defects. Click for more information and to register for the webinar!

IF workshop in Madrid

We were in Madrid this November for our European Workshop, this year focused on continence management and ageing with spina bifida and hydrocephalus.

Accessible toilets are a human right

We think that accessible toilets for persons with disabilities are a basic human right. Read our statement for the World Toilet Day!

"Saving Kidneys" training in Ukraine

Board member Dr. František Horn and the Spina Bifida and Hydrocephalus Association of Slovakia attended a training in Ternopil, Ukraine called "Saving Kidneys".

Family Care for Children with Disabilities

The “Family Care for Children with Disabilities: Practical Guidance for Frontline Workers in Low- and Middle-Income Countries” is a precious document for social service workers assisting children with disabilities and their families.

Open letter on the EU Work-life balance Directive

IF, together with COFACE Families Europe and 11 other NGOs, sent an open letter to the European Parliament, asking to find an agreement on the EU Work-life balance Directive by the end of the year.

In Memoriam: Thomas (Tom) Edmund Baroch, disability advocate

The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch

Mirela Bukovac at the Eurochild Conference 2018

IF Youth Group member Mirela participated at the Eurochild Conference 2018, "Building a better Europe with children: All aboard!"

The Global Prevention Initiative celebrates 2nd anniversary

On Sunday, October 28th the IF Global Prevention Initiative (IFGPI) celebrates its second anniversary. Read the full press release to know more about IFGPI activity so far!