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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Folic acid, human rights and sexuality among the topics at IF EU workshop in Belgrade

On 18-19 May, IF was in Belgrade for its first European workshop of 2019. Prevention, human rights, sexuality and ageing with SBH were some of the topics addressed during this intensive workshop!

IF Secretary General re-elected in EURORDIS Board of Directors

IF is very happy to announce that our Secretary General has been re-elected in the Boards of Directors of EURORDIS, which is now focusing on promoting holistic care for people living with rare diseases all over Europe.

'SKI FOR ALL' project: guidelines

Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.

Welcome to Athina, IF's new European Policy Officer!

This month Athina Giannoutsou joined our team! She will be IF's European Policy Officer, becoming the main liaison between our European members and the EU institutions.

IF submission on the rights of older persons with disabilities

People born with spina bifida and hydrocephalus are at risk of accelerated ageing and need to be protected against financial hardship and institutionalisation

Former Norwegian Minister and disability advocate Guro Fjellanger has passed away

Former Environmental Minister Guro Fjellanger, born with spina bifida, passed away much too soon at the age of 55.

'SKI for ALL' project by ASBI

Our Italian member organisation ASBI will coordinate a skiing project named “SKI for ALL”, part of the Erasmus+ Sport program and intended for children and young people with SBH or traumatic injuries.

World Health Day 2019: we need a Universal Health Coverage!

This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!

‘They Give Him a Chance’: a new study on inclusive primary education in Uganda

IF’s long-time partners Femke Bannink, Ruth Nalugya and Geert van Hove are the authors of a study aiming to give a new perspective on how disability is perceived in Uganda, and to develop a better way to include children with disabilities in the primary education system.