30 January 2019
IFGPI has started a new programme to engage IF members in prevention initiatives. The first prevention clinic has proved to be a great success!
28 January 2019
Researchers at the Sunnybrook Research Institute in Canada have created a survey on pregnancy complications and outcomes in women with spina bifida.
24 January 2019
Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and independent living!
9 January 2019
IF has launched a questionnaire on sexuality and body-awareness of people with Spina Bifida and Hydrocephalus (SBH).
17 December 2018
The World Folic Acid Awareness Week is approaching and we need your help to spread the message! Click for more information about what you can do and take a look at our toolkit for the WFAAW.
7 December 2018
This year IF took part to the annual conference of the European Day of Persons with Disabilities, organized by the European Commission in collaboration with the European Disability Forum.
23 November 2018
On December 4th, we will take part in an interactive webinar organized by the Folate Task Team focused on improved nutrition and how it can reduce the risk of neural tube defects. Click for more information and to register for the webinar!
20 November 2018
We were in Madrid this November for our European Workshop, this year focused on continence management and ageing with spina bifida and hydrocephalus.
19 November 2018
We think that accessible toilets for persons with disabilities are a basic human right. Read our statement for the World Toilet Day!
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
