1 July 2019
IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally
25 June 2019
IF is happy to publish its 2018 Annual Report, featuring IF activities and projects which were only made possible thanks to the collaboration of our members, partners and friends all over the world.
18 June 2019
We are looking for young people (18-35) living with SBH in Europe who want to become more self-confident and independent!
17 June 2019
Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!
14 June 2019
On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.
13 June 2019
Now that the European Work-Life Balance Directive has been finally adopted by the Council of the European Union, it's time for Member States to move towards its swift transposition. Why is it important for people with SBH?
29 May 2019
IF, together with five other organisations working in disability rights, sent an open letter to the Romanian government expressing grave concerns about the violations of human rights of young persons with disabilities in Romanian institutional care.
28 May 2019
During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.
27 May 2019
IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
