1 October 2025
October is Spina Bifida and Hydrocephalus Awareness Month, filled with inspiring events and activities organised by IF and its members across the globe. Together, we aim to highlight the urgent need for inclusive healthcare, rights, and opportunities for people living with Spina Bifida and Hydrocephalus. Join us in celebrating WSBHD on 25 October!
26 September 2025
Join us for the 31st International Conference on Spina Bifida and Hydrocephalus October 15–17, 2026 in Montreal, Canada. You are warmly invited to take part in this global gathering of experts, advocates, and community members. Register today and secure your place in the conference program!
18 September 2025
Every year on 1 October, the world comes together to celebrate the International Day of Older Persons, first proclaimed by the United Nations in 1990. This day is dedicated to honouring the contributions of older individuals and addressing the challenges they face across the globe.
9 September 2025
Youth camps can play a vital role in empowering young people with Spina Bifida and Hydrocephalus (SBH). IF member organisations in various countries organise successful youth camps focusing on practical abilities such as mobility, self-care, and confidence-building, while also fostering a sense of community and belonging among participants who share similar experiences.
19 August 2025
Established by the UN, August 12th has marked the celebration of International Youth Day (IYD) as a valuable opportunity for youth around the world to address the challenges they face and to advocate for meaningful change.
15 July 2025
Designated by the United Nations, August 12th marks International Youth Day - a global celebration that brings the world together to raise awareness of the cultural and legal issues affecting young people.
15 July 2025
The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity.
10 July 2025
Warsaw, 30 June 2025 – In a strong show of solidarity and commitment to the rights and inclusion of persons with disabilities, a Declaration supported by 25 EU Member States was prepared during the Polish Presidency of the Council of the European Union.
13 June 2025
IF welcomes the WHO Consultation for the updated version on the Assistive Products Priority List (APL), in particular that it acknowledges catheters, and related accessories, as essential assistive products for persons living with Spina Bifida and Hydrocephalus (SBH).
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
