3 November 2025
We are delighted to announce that this year’s WSBHD25 Challenge Winner is Fekadu Yadessa. Through his powerful message, Fekadu called for #Action4SBH on prevention through food fortification with folic acid in Ethiopia.
25 October 2025
Today we celebrate World Spina Bifida and Hydrocephalus Day. This policy brief calls for its recognition as an official United Nations International Day to raise global awareness, promote prevention through folic acid fortification, and advocate for inclusive policies and lifelong care.
5 October 2025
On October 1, the IF Working Group on Ageing with SBH highlighted the experiences of ageing with SBH emphasizing empowerment, independence, and inclusion across all life stages. Speakers shared inspiring stories of perseverance, dreams, and creativity, showing that with support and determination, people with SBH can lead meaningful, fulfilling lives.
1 October 2025
October is Spina Bifida and Hydrocephalus Awareness Month, filled with inspiring events and activities organised by IF and its members across the globe. Together, we aim to highlight the urgent need for inclusive healthcare, rights, and opportunities for people living with Spina Bifida and Hydrocephalus. Join us in celebrating WSBHD on 25 October!
26 September 2025
Join us for the 31st International Conference on Spina Bifida and Hydrocephalus October 15–17, 2026 in Montreal, Canada. You are warmly invited to take part in this global gathering of experts, advocates, and community members. Register today and secure your place in the conference program!
18 September 2025
Every year on 1 October, the world comes together to celebrate the International Day of Older Persons, first proclaimed by the United Nations in 1990. This day is dedicated to honouring the contributions of older individuals and addressing the challenges they face across the globe.
9 September 2025
Youth camps can play a vital role in empowering young people with Spina Bifida and Hydrocephalus (SBH). IF member organisations in various countries organise successful youth camps focusing on practical abilities such as mobility, self-care, and confidence-building, while also fostering a sense of community and belonging among participants who share similar experiences.
19 August 2025
Established by the UN, August 12th has marked the celebration of International Youth Day (IYD) as a valuable opportunity for youth around the world to address the challenges they face and to advocate for meaningful change.
15 July 2025
Designated by the United Nations, August 12th marks International Youth Day - a global celebration that brings the world together to raise awareness of the cultural and legal issues affecting young people.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
