9 September 2025
Youth camps can play a vital role in empowering young people with Spina Bifida and Hydrocephalus (SBH). IF member organisations in various countries organise successful youth camps focusing on practical abilities such as mobility, self-care, and confidence-building, while also fostering a sense of community and belonging among participants who share similar experiences.
19 August 2025
Established by the UN, August 12th has marked the celebration of International Youth Day (IYD) as a valuable opportunity for youth around the world to address the challenges they face and to advocate for meaningful change.
15 July 2025
Designated by the United Nations, August 12th marks International Youth Day - a global celebration that brings the world together to raise awareness of the cultural and legal issues affecting young people.
15 July 2025
The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity.
10 July 2025
Warsaw, 30 June 2025 – In a strong show of solidarity and commitment to the rights and inclusion of persons with disabilities, a Declaration supported by 25 EU Member States was prepared during the Polish Presidency of the Council of the European Union.
13 June 2025
IF welcomes the WHO Consultation for the updated version on the Assistive Products Priority List (APL), in particular that it acknowledges catheters, and related accessories, as essential assistive products for persons living with Spina Bifida and Hydrocephalus (SBH).
4 June 2025
Several IF member associations have expressed interest in hosting the 32nd International Spina Bifida and Hydrocephalus Conference in the fall of 2028. If your organisation is chosen to host the IF conference 2028, the IF Board of Directors will work closely with you to ensure smooth planning of the conference. We need some information from you to ensure that we can make the best choice of a host.
26 May 2025
From 4 to 8 April 2025 in Berlin, the International Disability Alliance (IDA) held a workshop for facilitators from IDA member organisations to support strategic engagement with the Global Disability Inclusion Report - a significant knowledge product from Global Disability Summit 2025 - and to equip Organisations of Persons with Disabilitiies (OPDs) in order to facilitate dialogue at national and regional levels
24 May 2025
Building on our previous successes in rehabilitation and prevention through food fortification, IF is pleased to see the adoption of the WHA Resolution on Rare Diseases. As a global community, we can look forward to the forthcoming actions by Member States to translate its commitments into meaningful change.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
