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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Launch IF Report on Ageing with Spina Bifida and Hydrocephalus

On the United Nations International Day of Older People, IF raises awareness on the rights and needs of people ageing with spina bifida and hydrocephalus.

Getting ready for WSBHD20

Join us on October 25 to celebrate the World Spina Bifida and Hydrocephalus Day 2020, with the theme "WSBHD20: united in COVID-19"!

Survey closed - COVID-19: Impact on people with SBH

Preliminary IF survey findings reveal how vital national and regional spina bifida and hydrocephalus organisations have been during the pandemic.

SBH youth community takes part in the International Youth Day

The SBH youth community raises awareness of spina bifida and hydrocephalus and the issues facing young people with these conditions when it comes to sexuality. Check the videos and posters!

'Chat with IF': last session of our online EU workshop

This year, the IF EU workshop took place online and we had a very nice closure: the 'Chat with IF' session, relaxed conversations with our members to connect with each other.

IF Annual Report 2019 is now available

IF is happy to publish our Annual Report 2019! You will learn about IF's projects and our members' achievements. Last year was IF's 40th anniversary so it definitely was a very important year for the SBH community.

WELCOME TO HILDUR, IF’S NEW EUROPEAN POLICY OFFICER!

Since July 1, IF has a new staff member: Hildur Önnudóttir is the new European Policy Officer. She is based in Brussels and we are very happy to count with her. Welcome to the IF family, Hildur!

Ageing with SBH: key topic of the 3rd IF webinar

The 3rd webinar of the IF EU online workshop focused on ageing with spina bifida and hydrocephalus. The webinar was led by the IF Working Group on Ageing, which presented the results of the survey launched in 2019.

First online IF European workshop

Within the current emergency situation due to COVID-19, IF has adapted the format and content of its European workshop. IF will meet its European members online!