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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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SBH youth community takes part in the International Youth Day

The SBH youth community raises awareness of spina bifida and hydrocephalus and the issues facing young people with these conditions when it comes to sexuality. Check the videos and posters!

'Chat with IF': last session of our online EU workshop

This year, the IF EU workshop took place online and we had a very nice closure: the 'Chat with IF' session, relaxed conversations with our members to connect with each other.

IF Annual Report 2019 is now available

IF is happy to publish our Annual Report 2019! You will learn about IF's projects and our members' achievements. Last year was IF's 40th anniversary so it definitely was a very important year for the SBH community.

WELCOME TO HILDUR, IF’S NEW EUROPEAN POLICY OFFICER!

Since July 1, IF has a new staff member: Hildur Önnudóttir is the new European Policy Officer. She is based in Brussels and we are very happy to count with her. Welcome to the IF family, Hildur!

Ageing with SBH: key topic of the 3rd IF webinar

The 3rd webinar of the IF EU online workshop focused on ageing with spina bifida and hydrocephalus. The webinar was led by the IF Working Group on Ageing, which presented the results of the survey launched in 2019.

First online IF European workshop

Within the current emergency situation due to COVID-19, IF has adapted the format and content of its European workshop. IF will meet its European members online!

Welcome to Sylvia Roozen: IF new Secretary General

IF is very happy to welcome our new Secretary General. From June 1, we count with Dr. Sylvia Roozen to lead IF into the future together with the whole team!

Joint response to the UN Policy Brief

138 Member States and Observers published a response to the United Nations Secretary-General’s Policy Brief on “A Disability-Inclusive Response to COVID-19”. They welcome guidance from the UN and encourage cooperation, investment and direct support from all stakeholders.

UN Policy Brief for a disability-inclusive response to COVID-19

Through this paper, the UN highlights the impact of COVID19 on persons with disabilities and the key actions and recommendations to make the response and recovery inclusive of persons with disabilities.