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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Joint response to the UN Policy Brief

138 Member States and Observers published a response to the United Nations Secretary-General’s Policy Brief on “A Disability-Inclusive Response to COVID-19”. They welcome guidance from the UN and encourage cooperation, investment and direct support from all stakeholders.

UN Policy Brief for a disability-inclusive response to COVID-19

Through this paper, the UN highlights the impact of COVID19 on persons with disabilities and the key actions and recommendations to make the response and recovery inclusive of persons with disabilities.

New advocacy tools to promote the implementation of folic acid interventions

Two new Knowledge Briefs have been published by the Folate Task Team, with the support of IF, to help reduce the incidence of neural tube defects, with a special focus on low and middle income countries

Welcome to Verónica, IF's new Administration Officer!

We warmly welcome Verónica, our new Administration Officer, to the IF team! She will be available to help you with any logistical and administrative issues. Thank you and welcome, Verónica!

UN Special Rapporteur warns against ableism in medical and scientific practice

Deeply rooted negative perceptions on the value of people with disabilities in society continue to influence legislation, policies, customs and practices related to prevention, cure and assisted dying

IF is looking for a European Policy Officer

We are looking for a new colleague to join the IF team who has experience on social policy, disability rights or health. Deadline for applications is 27 April. Online interviews will be held the week of 4 May.

Mourning the sudden loss of Irish disability advocate Frank Larkin

At age 48, Irish disability advocate Frank Larkin, born with spina bifida, passed away unexpectedly

COVID-19: testimonies from the SBH community

IF needs the input of the SBH community with regard to COVID-19. We have already received several testimonies and information from our members/partners, we would like to hear from you too!

How is the coronavirus affecting people with spina bifida and hydrocephalus?

To ensure that people with spina bifida and hydrocephalus receive the right information and support, we need to hear your experiences and concerns with regard to the coronavirus (COVID-19)