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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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World Spina Bifida and Hydrocephalus Day 2020

Join the 2020 World Spina Bifida and Hydrocephalus Day celebrations!

Infograph - Article 25 of the UNCRPD

Learn more about the rights of individuals with SBH as per article 25 of the UNCRPD

IF calls for equal treatment in employment for persons with disabilities in the EU

IF joins MEP Katrin Langensiepen in calling for better EU legislation on anti-discrimination and a strong EU Disability Strategy post 2020.

Launch IF Report on Ageing with Spina Bifida and Hydrocephalus

On the United Nations International Day of Older People, IF raises awareness on the rights and needs of people ageing with spina bifida and hydrocephalus.

Getting ready for WSBHD20

Join us on October 25 to celebrate the World Spina Bifida and Hydrocephalus Day 2020, with the theme "WSBHD20: united in COVID-19"!

Survey closed - COVID-19: Impact on people with SBH

Preliminary IF survey findings reveal how vital national and regional spina bifida and hydrocephalus organisations have been during the pandemic.

SBH youth community takes part in the International Youth Day

The SBH youth community raises awareness of spina bifida and hydrocephalus and the issues facing young people with these conditions when it comes to sexuality. Check the videos and posters!

'Chat with IF': last session of our online EU workshop

This year, the IF EU workshop took place online and we had a very nice closure: the 'Chat with IF' session, relaxed conversations with our members to connect with each other.

IF Annual Report 2019 is now available

IF is happy to publish our Annual Report 2019! You will learn about IF's projects and our members' achievements. Last year was IF's 40th anniversary so it definitely was a very important year for the SBH community.