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Preliminary IF survey findings reveal how vital national and regional spina bifida and hydrocephalus organisations have been during the pandemic.

138 Member States and Observers published a response to the United Nations Secretary-General’s Policy Brief on “A Disability-Inclusive Response to COVID-19”. They welcome guidance from the UN and encourage cooperation, investment and direct support from all stakeholders.

Through this paper, the UN highlights the impact of COVID19 on persons with disabilities and the key actions and recommendations to make the response and recovery inclusive of persons with disabilities.

Deeply rooted negative perceptions on the value of people with disabilities in society continue to influence legislation, policies, customs and practices related to prevention, cure and assisted dying

To ensure that people with spina bifida and hydrocephalus receive the right information and support, we need to hear your experiences and concerns with regard to the coronavirus (COVID-19)

We hope that the new European Commission will work towards the full inclusion of persons with spina bifida and hydrocephalus in line with the CRPD