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Breaking news: A recent European study by EDF reveals that there is currently no country in the European region that fully complies with article 12 of the CRPD.

The International Federation for Spina Bifida and Hydrocephalus (IF) calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis.

IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.

IF announces a call for input to inform the Special Rapporteur’s forthcoming report to the 79th session of the UN General Assembly in October 2024. A Survey to Assess the Involvement of SBH Associations in the Implementation of SDGs.

Technology has always played an important role in facilitating the mobility and accessibility for persons with disabilities, including the global Spina Bifida and Hydrocephalus (SBH) community. Now more than ever people and communities are becoming increasingly reliant on technologies for various aspects of private and public life, including in education. 

IF joined the #ZeroCon24 in its mission to ensure zero barriers towards education. IF's Secretary General Dr Sylvia Roozen provided an Impulse Statement and moderated a session whereby Zero Project Awardees among others focussed on proven solutions that support disabled individuals in remote areas, focusing on early disorder detection and assistive devices. The session is broadcasted from the United Nations Office in Vienna, Austria.