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As the year comes to an end, we take the opportunity to reflect on our various achievements and the exciting activities that the IF Working Group on Ageing with SBH carried out during 2025. 

On October 1, the IF Working Group on Ageing with SBH highlighted the experiences of ageing with SBH emphasizing empowerment, independence, and inclusion across all life stages. Speakers shared inspiring stories of perseverance, dreams, and creativity, showing that with support and determination, people with SBH can lead meaningful, fulfilling lives.

Every year on 1 October, the world comes together to celebrate the International Day of Older Persons, first proclaimed by the United Nations in 1990. This day is dedicated to honouring the contributions of older individuals and addressing the challenges they face across the globe.  

The IF Working Group on Ageing published its report “Ageing With Spina Bifida and Hydrocephalus: An Overview of Best Practices Around the World”. Also, the Executive Summary for the report is provided.

IF launched the report “Ageing with Spina Bifida and Hydrocephalus - Finding from Online Focus Group Discussions”. The report is a result of Focus Group Discussions during [month] 2021 with individuals with SBH.

IF has published a statement on ageing with Spina Bifida and Hydrocephalus (SBH).  Improvements in treatment and care means that there is a growing population of older people with SBH. The IF Working Group on Ageing with Spina Bifida and Hydrocephalus has been exploring the needs and challenges faced by individuals with lived experiences of ageing with SBH.