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On September 3 Slaveya Kostadinova, president of SBHB, presented the most serious difficulties that Bulgarian children living with spina bifida and hydrocephalus face to the UNCRPD Committee members.

IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.

The rights of newborns with birth defects and disabilities need to be protected too, to safeguard their lives and offer them the opportunity to thrive.

What does it take for persons with Spina Bifida and Hydrocephalus to reach the highest attainable standard of health?

People with disabilities need to be involved in reviewing the progress of the implementation of the Agenda 2030.

5 years ago the United Nations endorsed a resolution that should encourage countries to support universal health coverage and guarantee the right to quality healthcare for all.