5 September 2024
The 5th of September is an UN International Day of Charity and IF invites you to celebrate by making your symbolic donation.
1 August 2024
This year 2024, the IF International Youth Group SBH would like to take this opportunity to raise awareness about the importance of several mental health related topics, including the role of friendships, sports and exercises, body confidence and self-esteem, and physical health. When? August 12!
1 July 2024
Do you want to work within an international environment to represent persons with Spina Bifida and or Hydrocephalus and their families? You can Join Now!
13 June 2024
IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.
13 June 2024
In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.
5 June 2024
Victorial Sandoval is the new President of The International Federation for Spina Bifida and Hydrocephalus.
29 May 2024
This year marks the seventy-seventh World Health Assembly (WHA77) where we celebrate one year one year after the WHO EB decided to recommend to the WHA76 the adoption the resolution ‘Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification’.
27 May 2024
On May 27 IF together with its partners organised an in-person WHA side event titled ‘Congenital Anomalies and Universal Health: Leaving No One Behind’. During this side event on May 27th, 2024 it was discussed what resources are needed to serve children born with congenital anomalies around the globe in need of lifelong care, and how to advocate with policymakers for their inclusion in the universal health coverage agenda.
27 May 2024
During the WHA77 IF Secretary General discussed joint approaches to ensure social protection for food security and nutrition for all!