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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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The 17th Session of the Conference of States Parties to the CRPD

IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.

IF ANNUAL REPORT 2023 IS NOW AVAILABLE!

In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.

VICTORIA SANDOVAL - ELECTED IF PRESIDENT

Victorial Sandoval is the new President of The International Federation for Spina Bifida and Hydrocephalus.

One Year after the Adoption of the WHA76.19 Resolution

This year marks the seventy-seventh World Health Assembly (WHA77) where we celebrate one year one year after the WHO EB decided to recommend to the WHA76 the adoption the resolution ‘Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification’.

WHA77 Side Event Congenital Anomalies and Universal Health: Leaving No One Behind

On May 27 IF together with its partners organised an in-person WHA side event titled ‘Congenital Anomalies and Universal Health: Leaving No One Behind’. During this side event on May 27th, 2024 it was discussed what resources are needed to serve children born with congenital anomalies around the globe in need of lifelong care, and how to advocate with policymakers for their inclusion in the universal health coverage agenda.

IF meets WHO champions at the WHA77

During the WHA77 IF Secretary General discussed joint approaches to ensure social protection for food security and nutrition for all!

Meet & Greet: Youth & Ageing with SBH

IF organised a 'Meet and Greet' meeting in May 2024 to facilitate a collaborative discussion between members of the IF International Youth Group SBH and the IF Working Group on Ageing with SBH.

How is your association involved in the implementation of SDGs?

IF announces a call for input to inform the Special Rapporteur’s forthcoming report to the 79th session of the UN General Assembly in October 2024. A Survey to Assess the Involvement of SBH Associations in the Implementation of SDGs.

Youth around the globe calls for disability-inclusive development! 

The International Disability Alliance Youth Committee, together with the Equal World campaign and the Stakeholder Group of Persons with Disabilities, created a 10-point action plan for a more inclusive future. From sustainable financing to tech innovation and global peace, these actions demand decision-makers' attention and action.