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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Join the international UN Day of Charity!

The 5th of September is an UN International Day of Charity and IF invites you to celebrate by making your symbolic donation.

Get ready for the International Youth Day 2024

This year 2024, the IF International Youth Group SBH would like to take this opportunity to raise awareness about the importance of several mental health related topics, including the role of friendships, sports and exercises, body confidence and self-esteem, and physical health. When? August 12!

IF is Hiring!

Do you want to work within an international environment to represent persons with Spina Bifida and or Hydrocephalus and their families? You can Join Now!

The 17th Session of the Conference of States Parties to the CRPD

IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.

IF ANNUAL REPORT 2023 IS NOW AVAILABLE!

In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.

VICTORIA SANDOVAL - ELECTED IF PRESIDENT

Victorial Sandoval is the new President of The International Federation for Spina Bifida and Hydrocephalus.

One Year after the Adoption of the WHA76.19 Resolution

This year marks the seventy-seventh World Health Assembly (WHA77) where we celebrate one year one year after the WHO EB decided to recommend to the WHA76 the adoption the resolution ‘Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification’.

WHA77 Side Event Congenital Anomalies and Universal Health: Leaving No One Behind

On May 27 IF together with its partners organised an in-person WHA side event titled ‘Congenital Anomalies and Universal Health: Leaving No One Behind’. During this side event on May 27th, 2024 it was discussed what resources are needed to serve children born with congenital anomalies around the globe in need of lifelong care, and how to advocate with policymakers for their inclusion in the universal health coverage agenda.

IF meets WHO champions at the WHA77

During the WHA77 IF Secretary General discussed joint approaches to ensure social protection for food security and nutrition for all!