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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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The UN Committee Evaluation of Belarus, Belgium, Denmark, Netherlands and Ukraine

National SBH Associations play a key role in monitoring the implementation of the UNCRPD! Have a look below to understand which countries come for review of adoption of List of Issues for the year 2025. It is strongly advised to prepare and submit reports as early as possible.

Legal capacity: Personal choice and control

Breaking news: A recent European study by EDF reveals that there is currently no country in the European region that fully complies with article 12 of the CRPD.

How to include organisations of persons with disabilities in humanitarian action?

The International Federation for Spina Bifida and Hydrocephalus (IF) calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis.

Paralympics 2024

Congratulations to all Athletes who showed their unique strengths during the Paralympics 2024

Join the international UN Day of Charity!

The 5th of September is an UN International Day of Charity and IF invites you to celebrate by making your symbolic donation.

Get ready for the International Youth Day 2024

This year 2024, the IF International Youth Group SBH would like to take this opportunity to raise awareness about the importance of several mental health related topics, including the role of friendships, sports and exercises, body confidence and self-esteem, and physical health. When? August 12!

IF is Hiring!

Do you want to work within an international environment to represent persons with Spina Bifida and or Hydrocephalus and their families? You can Join Now!

The 17th Session of the Conference of States Parties to the CRPD

IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.

IF ANNUAL REPORT 2023 IS NOW AVAILABLE!

In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.