Latest news

Make sure to follow our social media and take part in the IFGPI's Women's Health Wednesday polls that are posted each week with topics on prevention!

On September 3 Slaveya Kostadinova, president of SBHB, presented the most serious difficulties that Bulgarian children living with spina bifida and hydrocephalus face to the UNCRPD Committee members.

Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.

Congratulations to Dr. G.D. Agrawal, founder of the company Surgiwear in India, which produces the Chhabra shunt for the treatment of Hydrocephalus!

IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.