25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.
13 February 2019
The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard!
31 January 2019
2019 marks the 10-year anniversary of the Smarter Futures partnership in which Nouryon collaborates with the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International (HKI), and the Food Fortification Initiative (FFI) to improve and increase availability of fortified wheat, maize flour and rice that meets quality and nutrition standards in Africa.
30 January 2019
IFGPI has started a new programme to engage IF members in prevention initiatives. The first prevention clinic has proved to be a great success!
28 January 2019
Researchers at the Sunnybrook Research Institute in Canada have created a survey on pregnancy complications and outcomes in women with spina bifida.
24 January 2019
Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and independent living!
9 January 2019
IF has launched a questionnaire on sexuality and body-awareness of people with Spina Bifida and Hydrocephalus (SBH).
17 December 2018
The World Folic Acid Awareness Week is approaching and we need your help to spread the message! Click for more information about what you can do and take a look at our toolkit for the WFAAW.
7 December 2018
This year IF took part to the annual conference of the European Day of Persons with Disabilities, organized by the European Commission in collaboration with the European Disability Forum.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
