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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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World Health Day 2019: we need a Universal Health Coverage!

This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!

‘They Give Him a Chance’: a new study on inclusive primary education in Uganda

IF’s long-time partners Femke Bannink, Ruth Nalugya and Geert van Hove are the authors of a study aiming to give a new perspective on how disability is perceived in Uganda, and to develop a better way to include children with disabilities in the primary education system.

EU Parliament approves the European Accessibility Act

Yesterday 13th of March the European Accessibility Act was approved by the European Parliament. Even if there is still a long way to go, a first step towards creating a more accessible and inclusive Europe is done!

Elena designated Director of the National Observatory of Disability

It's such a great news to learn that Elena Zappoli, who is IF Board member and President of APEBI, has been designated as Director of the National Observatory of Disability!

Folic acid distribution in schools in Uganda

We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age!

Open Letter to the EPSCO Council

It's time to approve the Work-Life Balance Directive! Now that a first important step in the right direction has been taken, IF joins COFACE Families Europe and 11 other NGOs in calling for a swift adoption of the directive.

European Elections 2019: why it is important to vote

At the end of May we are all called to vote for the European elections 2019 and IF strongly encourages European people with SBH to vote. Let's make make sure that the EU will become an inclusive society for all!

#ShowYourRare for Rare Disease Day 2019!

For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!

IF Secretary General advocates for rare diseases at UN

IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.