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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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UK consultation on proposal to introduce mandatory fortification of flour with folic acid

The UK Government asks for people's views on whether flour millers should be required by law to add folic acid to flour to help reduce the incidence of neural tube defects

Joint statement on the Right to Family of children without parental care

In a joint statement, 11 disability rights and children's rights organisations emphasise the right to family and make recommendations to the UN General Assembly

IF joins Global WHO Birth Defects Technical Working Group

IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally

IF presents its Annual Report 2018

IF is happy to publish its 2018 Annual Report, featuring IF activities and projects which were only made possible thanks to the collaboration of our members, partners and friends all over the world. 

Applications now open for IF's 4th "My Rights" Youth Training

We are looking for young people (18-35) living with SBH in Europe who want to become more self-confident and independent!

IF Survey: What does ageing with SBH mean to you?

Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!

IF advocates for birth registration at 12th COSP

On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.

Work-Life Balance Directive adopted by the Council of the European Union

Now that the European Work-Life Balance Directive has been finally adopted by the Council of the European Union, it's time for Member States to move towards its swift transposition. Why is it important for people with SBH?

Open Letter on the violation of the rights of young people with disabilities in institutional care

IF, together with five other organisations working in disability rights, sent an open letter to the Romanian government expressing grave concerns about the violations of human rights of young persons with disabilities in Romanian institutional care.