16 July 2019
IF participated at EPF STYPA 2019 edition organised in Vienna from 7-10 July 2019! The main focus was on ethical dilemmas and evolution of patient advocacy.
12 July 2019
The UK Government asks for people's views on whether flour millers should be required by law to add folic acid to flour to help reduce the incidence of neural tube defects
2 July 2019
In a joint statement, 11 disability rights and children's rights organisations emphasise the right to family and make recommendations to the UN General Assembly
1 July 2019
IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally
25 June 2019
IF is happy to publish its 2018 Annual Report, featuring IF activities and projects which were only made possible thanks to the collaboration of our members, partners and friends all over the world.
18 June 2019
We are looking for young people (18-35) living with SBH in Europe who want to become more self-confident and independent!
17 June 2019
Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!
14 June 2019
On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.
13 June 2019
Now that the European Work-Life Balance Directive has been finally adopted by the Council of the European Union, it's time for Member States to move towards its swift transposition. Why is it important for people with SBH?
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
