10 September 2021
On October 1, the world will celebrate the International Day of Older Persons. This day was designated by the United Nations General Assembly (by resolution 45/106) on 14 December 1990. On this day, IF takes this opportunity to raise awareness on ageing with Spina Bifida and Hydrocephalus, the barriers older persons with SBH can face and the need for lifting these barriers.
4 August 2021
The World Spina Bifida and Hydrocephalus Day 2021 is coming up soon! On October 25, we will be celebrating the World Spina Bifida and Hydrocephalus Day 2021 (#WSBHD21) on the theme of “Unlock Your Right to Health”.
29 July 2021
The International Federation for Spina Bifida and Hydrocephalus (IF) is an active member of the Coalition to Protect The Right to Family Life for All Children. In 2019 the Coalition published a statement on the right to family of children without parental care.
14 July 2021
The COVID-19 pandemic continues to have a profound impact on communities across the world and individuals with spina bifida and/or hydrocephalus (SBH) and their families have seen pre-existing barriers to full societal inclusion increase and new challenges emerge.
6 July 2021
Cato Lie is the new President of IF - The International Federation for Spina Bifida and Hydrocephalus. He succeeds the former president Elena Zappoli from the Asociación para Espina Bifida e Hidrocefalia (APEBI) in Argentina.
21 June 2021
It is with sadness that we announce the passing of our Senior Advisor Anna Verster, a much loved colleague of the IF family and founding mother of the Smarter Futures partnership. Anna was a much-valued and stalwart supporter of the International Federation for Spina Bifida and Hydrocephalus and the Smarter Futures partnership over many years and will be greatly missed. Our heartfelt sympathy and thoughts are with her family and friends.
14 June 2021
The General Meeting of the International Federation for Spina Bifida and Hydrocephalus (IF) took place on May 26 2021. It was inspiring to see the many Members present from countries all over the world.
20 April 2021
IF invites you to attend and present your work during the upcoming Multidisciplinary Care Conference. This conference was originally scheduled for the previous year. However, due to COVID-19, IF has to do it differently and invites you for the first ONLINE (and free) conference.
15 April 2021
On April 10th, we celebrated the first IF’s Siblings Day which was an absolute success THANKS TO YOU! IF honoured siblings with SBH because siblings provide unconditional love and support throughout life: “They are like sunshine, it makes you happy just to know they are always there!”.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
