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Obituary Notice

It is with sadness that we announce the passing of our Senior Advisor Anna Verster, a much loved colleague of the IF family and founding mother of the Smarter Futures partnership. Anna was a much-valued and stalwart supporter of the International Federation for Spina Bifida and Hydrocephalus and the Smarter Futures partnership over many years and will be greatly missed. Our heartfelt sympathy and thoughts are with her family and friends.

IF General Meeting 2021

The General Meeting of the International Federation for Spina Bifida and Hydrocephalus (IF) took place on May 26 2021. It was inspiring to see the many Members present from countries all over the world.

CALL FOR ABSTRACTS - IF Multidisciplinary Care Conference

IF invites you to attend and present your work during the upcoming Multidisciplinary Care Conference. This conference was originally scheduled for the previous year. However, due to COVID-19, IF has to do it differently and invites you for the first ONLINE (and free) conference.

THE FIRST IF'S SIBLINGS DAY WAS A SUCCESS!

On April 10th, we celebrated the first IF’s Siblings Day which was an absolute success THANKS TO YOU! IF honoured siblings with SBH because siblings provide unconditional love and support throughout life: “They are like sunshine, it makes you happy just to know they are always there!”.

IF urges effective implementation of the European Union Strategy for the Rights of Persons with Disabilities

IF has published a statement outlining its recommendations to the EU institutions, Member State governments and IF Member Associations for the effective implementation of the European Union Strategy for the Rights of Persons with Disabilities.

Youth Group

World Folic Acid Awareness Week 2021 was a success!

During the week of January 9 to 15 2021 IF celebrated the World Folic Acid Awareness Week (WFAAW). This is an annual recurring week in IF’s calendar to focus on additional awareness activities for folic acid and prevention all over the world.

Smarter Futures, an African way to promote food fortification to help prevent Neural Tube Defects.

To promote the availability of good quality wheat- and maize flour enriched with at least iron and folic acid, the Food Fortification Initiative (FFI), the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International and the then AkzoNobel, now Nouryon, created the Smarter Futures partnership some 10 years ago. Now, it is a much larger partnership with a Steering group comprising of FFI, Global Alliance for Improved Nutrition (GAIN), Muehlenchemie, Buhler, Nutrition International (NI), Nouryon (formerly AkzoNobel), HKI, World Food Programme (WFP), IF and the Dutch Ministry of Foreign Affairs.

2021 WORLD FOLIC ACID AWARENESS WEEK 9th - 15th January!

IF will kick off the annual World Folic Acid Awareness Week (WFAAW) on Saturday 9th January 2021.