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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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THE FIRST IF'S SIBLINGS DAY WAS A SUCCESS!

On April 10th, we celebrated the first IF’s Siblings Day which was an absolute success THANKS TO YOU! IF honoured siblings with SBH because siblings provide unconditional love and support throughout life: “They are like sunshine, it makes you happy just to know they are always there!”.

IF urges effective implementation of the European Union Strategy for the Rights of Persons with Disabilities

IF has published a statement outlining its recommendations to the EU institutions, Member State governments and IF Member Associations for the effective implementation of the European Union Strategy for the Rights of Persons with Disabilities.

Youth Group

World Folic Acid Awareness Week 2021 was a success!

During the week of January 9 to 15 2021 IF celebrated the World Folic Acid Awareness Week (WFAAW). This is an annual recurring week in IF’s calendar to focus on additional awareness activities for folic acid and prevention all over the world.

Smarter Futures, an African way to promote food fortification to help prevent Neural Tube Defects.

To promote the availability of good quality wheat- and maize flour enriched with at least iron and folic acid, the Food Fortification Initiative (FFI), the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International and the then AkzoNobel, now Nouryon, created the Smarter Futures partnership some 10 years ago. Now, it is a much larger partnership with a Steering group comprising of FFI, Global Alliance for Improved Nutrition (GAIN), Muehlenchemie, Buhler, Nutrition International (NI), Nouryon (formerly AkzoNobel), HKI, World Food Programme (WFP), IF and the Dutch Ministry of Foreign Affairs.

2021 WORLD FOLIC ACID AWARENESS WEEK 9th - 15th January!

IF will kick off the annual World Folic Acid Awareness Week (WFAAW) on Saturday 9th January 2021.

IF congratulates the new UN Special Rapporteur on the Rights of Persons with Disabilities Professor Gerard Quinn and the new members of the CRPD Committee

IF congratulates Professor Quinn on his appointment as UN Special Rapporteur on the Rights of Persons with Disabilities and the new members of the Committee on the Rights of Persons with Disabilities.

IF event on disability rights and sexual health

On 7th of December 2020 IF was joined by the European Disability Forum, the European Network for Independent Living and MEP Stelios Kympouropoulos for an online event on disability rights and sexual health. 

IF position paper on the 2021-2027 Multiannual Financial Framework of the European Union.

IF recently published a position paper with recommendations to ensure that the implementation of the Multiannual Financial Framework (MFF) of the EU advances the rights of individuals with SBH within and beyond the EU.