15 February 2022
Each year, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Women’s Day (#IWD) on March 8th 2022 together with our Global Community and IF Women Focus Group Discussions. We are calling YOU to join us, the activists, leaders, innovators and change-makers working every day to build an equal future.
13 January 2022
The IF President, Cato Lie, opened the event with a word of welcome and pointed out the importance of folic acid for healthy pregnancies and in the prevention of Neural Tube Defects (NTDs), in particular Spina Bifida and Hydrocephalus (SBH).
12 January 2022
On December 15 2021 the inauguration of the European Commission Disability Platform took place as promised in the European Union Strategy for the Rights of Persons with Disabilities (ESRPD).
3 January 2022
IF organizes its yearly awareness week for primary prevention of NTDs during the World Folic Acid Awareness Week from January 3 to 9, 2022.
27 December 2021
As the year draws to a close IF celebrates the publication of the IF Statement on mental, physical and sexual health for youth with SBH.
27 December 2021
IF launched the report “Ageing with Spina Bifida and Hydrocephalus - Finding from Online Focus Group Discussions”. The report is a result of Focus Group Discussions during [month] 2021 with individuals with SBH.
27 December 2021
IF launches the report “Mental Health Implications of COVID-19 on Youth with Spina Bifida and Hydrocephalus- an explorative survey conducted by the IF International Youth Group with SBH” . The report underlines the current perceptions and lived experiences among youth with SBH with respect to aspects of mental health. This document builds upon an explorative study conducted in 2019 by the IF International Youth Group with SBH.
15 December 2021
On November 8th, 9th, 15th and 16th, The International Federation for Spina Bifida and Hydrocephalus gave the “IF Human Rights and Advocacy Training - Accessibility in Focus”
15 December 2021
On October 27th, the IF Working Group on Ageing with SBH held the “Ageing Well with Spina Bifida and Hydrocephalus” to celebrate the World Spina Bifida and Hydrocephalus Day 2021. This side event of the WSBHD was an occasion for individuals to speak up about their experiences and to share their personal testimonies without any taboo.
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