14 December 2021
Join IF on Monday 3rd of January 2022 to kick off the annual World Folic Acid Awareness Week (WFAAW). This year WFAAW22 will take place from January 3rd to 9th. You are invited for the main webinar event including speakers from all over the world as well as sharing the social media WFAAW toolkit.
3 December 2021
Today on December 3rd, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Day of Persons with Disabilities (IDPD). The United Nations General Assembly declared this day in 1992 (by resolution 47/3) with the goal to promote the rights and well-being of people with disabilities in all aspects of society and development, as well as to raise awareness about their position in political, social, economic, and cultural life.
2 December 2021
The European Commission together with the European Disability Forum organise a conference for the European Day of Persons with Disabilities. Held on 2-3 December, the 2021 European Day of Persons with Disabilities focuses on the topics of access to healthcare and digital transformation.
30 November 2021
From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care. Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community.
30 November 2021
IF has published a statement on ageing with Spina Bifida and Hydrocephalus (SBH). Improvements in treatment and care means that there is a growing population of older people with SBH. The IF Working Group on Ageing with Spina Bifida and Hydrocephalus has been exploring the needs and challenges faced by individuals with lived experiences of ageing with SBH.
2 November 2021
On October 29th, to celebrate the World Spina Bifida and Hydrocephalus Day, the IF International Youth Group held the “Digital Escape Room - Unlock Your Right to Health” side-event.
27 October 2021
The World Spina Bifida and Hydrocephalus Day (WSBHD) main event, taking place on October 25 2021, was an inspiring moment of sharing across countries and continents. Together with a panel of speakers and participants from all around the world, a rich and elaborate programme was established.
27 October 2021
The side-event “From Traditional to Digital – Unlock Your Digital Communication”, taking place on October 19 2021, was the first event organised by the International Federation for Spina Bifida and Hydrocephalus (IF) exclusively for Member Associations’ Communications persons.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
