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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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“Digital Escape Room - Unlock Your Rights”

On October 29th, to celebrate the World Spina Bifida and Hydrocephalus Day, the IF International Youth Group held the “Digital Escape Room - Unlock Your Right to Health” side-event.

The World Spina Bifida and Hydrocephalus 2021 Conference

The World Spina Bifida and Hydrocephalus Day (WSBHD) main event, taking place on October 25 2021, was an inspiring moment of sharing across countries and continents. Together with a panel of speakers and participants from all around the world, a rich and elaborate programme was established.

“From Traditional to Digital – Unlock Your Digital Communication”

The side-event “From Traditional to Digital – Unlock Your Digital Communication”, taking place on October 19 2021, was the first event organised by the International Federation for Spina Bifida and Hydrocephalus (IF) exclusively for Member Associations’ Communications persons.

The World Spina Bifida and Hydrocephalus Day Main Event

The World Spina Bifida and Hydrocephalus Day 2021 is around the corner! IF welcomes October 2021 as an awareness month during which various events and activities will take place around the World Spina Bifida and Hydrocephalus Day (WSBHD).

IF statement on EU reporting to CRPD

The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is extremely important for IF and the global SBH community. Within it the indisputable rights of persons with disabilities are enshrined to which all States Parties to the UNCRPD commit to protect and advance. 

WSBHD21 side event “Digital Escape Room - Unlock Your Rights”

The “Digital Escape Room - Unlock Your Rights” side-event organised, by the IF International Youth Group, to celebrate with us the World Spina Bifida and Hydrocephalus Day 2021.

WSBHD21 side-event “Ageing well with Spina Bifida and Hydrocephalus”

The “Ageing well with Spina Bifida and Hydrocephalus” side-event organised, by the Working Group on Ageing, to celebrate with us the World Spina Bifida and Hydrocephalus Day 2021.

WSBHD21 side-event ‘From Traditional to Digital - Unlock Your Digital Communication’

On October 25th 2021, the International Federation for Spina Bifida and Hydrocephalus together with worldwide members will celebrate the World Spina Bifida and Hydrocephalus Day 2021 (WSBHD21) under the theme “Unlock Your Rights to Health”. IF facilitates dialogues and exchanges of best practices among IF Member Associations around the world to optimise the dissemination of information and campaigns on digital platforms.  Especially for the WSBHD21, IF organises a side event on Communication: ‘From Traditional to Digital - Unlock Your Digital Communication’ to which all Communications Coordinator of Member Associations are exclusively invited.

THE INTERNATIONAL FEDERATION FOR SPINA BIFIDA AND HYDROCEPHALUS CONFERENCE ON MULTIDISCIPLINARY CARE

The first online IF international Conference on multidisciplinary Care for Spina Bifida and Hydrocephalus taking place from September 14 to 17 2021 was a great success.