27 December 2021
IF launches the report “Mental Health Implications of COVID-19 on Youth with Spina Bifida and Hydrocephalus- an explorative survey conducted by the IF International Youth Group with SBH” . The report underlines the current perceptions and lived experiences among youth with SBH with respect to aspects of mental health. This document builds upon an explorative study conducted in 2019 by the IF International Youth Group with SBH.
15 December 2021
On November 8th, 9th, 15th and 16th, The International Federation for Spina Bifida and Hydrocephalus gave the “IF Human Rights and Advocacy Training - Accessibility in Focus”
15 December 2021
On October 27th, the IF Working Group on Ageing with SBH held the “Ageing Well with Spina Bifida and Hydrocephalus” to celebrate the World Spina Bifida and Hydrocephalus Day 2021. This side event of the WSBHD was an occasion for individuals to speak up about their experiences and to share their personal testimonies without any taboo.
14 December 2021
Join IF on Monday 3rd of January 2022 to kick off the annual World Folic Acid Awareness Week (WFAAW). This year WFAAW22 will take place from January 3rd to 9th. You are invited for the main webinar event including speakers from all over the world as well as sharing the social media WFAAW toolkit.
3 December 2021
Today on December 3rd, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Day of Persons with Disabilities (IDPD). The United Nations General Assembly declared this day in 1992 (by resolution 47/3) with the goal to promote the rights and well-being of people with disabilities in all aspects of society and development, as well as to raise awareness about their position in political, social, economic, and cultural life.
2 December 2021
The European Commission together with the European Disability Forum organise a conference for the European Day of Persons with Disabilities. Held on 2-3 December, the 2021 European Day of Persons with Disabilities focuses on the topics of access to healthcare and digital transformation.
30 November 2021
From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care. Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community.
30 November 2021
IF has published a statement on ageing with Spina Bifida and Hydrocephalus (SBH). Improvements in treatment and care means that there is a growing population of older people with SBH. The IF Working Group on Ageing with Spina Bifida and Hydrocephalus has been exploring the needs and challenges faced by individuals with lived experiences of ageing with SBH.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
