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The European Commission together with the European Disability Forum organise a conference for the European Day of Persons with Disabilities. Held on 2-3 December, the 2021 European Day of Persons with Disabilities focuses on the topics of access to healthcare and digital transformation. 

The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is extremely important for IF and the global SBH community. Within it the indisputable rights of persons with disabilities are enshrined to which all States Parties to the UNCRPD commit to protect and advance. 

The International Federation for Spina Bifida and Hydrocephalus (IF) is an active member of the Coalition to Protect The Right to Family Life for All Children. In 2019 the Coalition published a statement on the right to family of children without parental care.

The COVID-19 pandemic continues to have a profound impact on communities across the world and individuals with spina bifida and/or hydrocephalus (SBH) and their families have seen pre-existing barriers to full societal inclusion increase and new challenges emerge. 

IF has published a statement outlining its recommendations to the EU institutions, Member State governments and IF Member Associations for the effective implementation of the European Union Strategy for the Rights of Persons with Disabilities.

IF congratulates Professor Quinn on his appointment as UN Special Rapporteur on the Rights of Persons with Disabilities and the new members of the Committee on the Rights of Persons with Disabilities.