3 May 2024
The International Disability Alliance Youth Committee, together with the Equal World campaign and the Stakeholder Group of Persons with Disabilities, created a 10-point action plan for a more inclusive future. From sustainable financing to tech innovation and global peace, these actions demand decision-makers' attention and action.
30 April 2024
The upcoming 30th International Conference for Spina Bifida and Hydrocephalus will take place on October 24-26 in Kuala Lumpur, Malaysia. It is an anniversary conference and a great opportunity for youth to be visible, meet other young people around the world, present the youth work on an international stage, interact with healthcare professionals, scientists, policymakers, and develop new networks. Support our youth to participate!
17 August 2022
On August 11 2022, The IF International Youth SBH Meeting: Independent Living in Your Eyes was organised by the IF International Youth Group SBH.
15 July 2022
On August 12 2022, the IF International Youth Group SBH would like to mark this occasion this year. Our goal is to raise awareness of spina bifida and hydrocephalus (SBH) and one of the current youth issues around the world: Independent Living. We are calling YOU, all young people with SBH to join this campaign with us.
3 March 2022
On February 25 2022, the IF International Youth Group held a Meet & Greet with Vangelis Koutalianos, a true motivational speaker born with Spina Bifida. During this event, young participants had a chance to listen and chat with Vangelis Koutalianos. He shared with all the participants lots of interesting and inspiring life stories.
27 December 2021
As the year draws to a close IF celebrates the publication of the IF Statement on mental, physical and sexual health for youth with SBH.
27 December 2021
IF launches the report “Mental Health Implications of COVID-19 on Youth with Spina Bifida and Hydrocephalus- an explorative survey conducted by the IF International Youth Group with SBH” . The report underlines the current perceptions and lived experiences among youth with SBH with respect to aspects of mental health. This document builds upon an explorative study conducted in 2019 by the IF International Youth Group with SBH.
15 December 2021
On November 8th, 9th, 15th and 16th, The International Federation for Spina Bifida and Hydrocephalus gave the “IF Human Rights and Advocacy Training - Accessibility in Focus”
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
