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19–27 of 53 results

Survey closed - COVID-19: Impact on people with SBH

Preliminary IF survey findings reveal how vital national and regional spina bifida and hydrocephalus organisations have been during the pandemic.

UN Special Rapporteur warns against ableism in medical and scientific practice

Deeply rooted negative perceptions on the value of people with disabilities in society continue to influence legislation, policies, customs and practices related to prevention, cure and assisted dying

COVID-19: testimonies from the SBH community

IF needs the input of the SBH community with regard to COVID-19. We have already received several testimonies and information from our members/partners, we would like to hear from you too!

IF participation at the EDPD event in Brussels

Staff members, youth representatives from different countries, Board member... IF was very well represented at the European Days of Persons with Disability which took place in Brussels on 28-29 November

IF responds to UN Special Rapporteur questionnaire on bioethics and disability

IF describes how the negative perception of disability has influenced strategies and policies related to prenatal screening, abortion and euthanasia

Youth conference on sexuality coming soon!

The IF Youth Group has organised an international event on sexuality and body awareness that will take place on October 5-6 in Varese (Italy).

IF survey on ageing available in 12 languages!

The survey is now available in English, Dutch/Flemish, French, German, Italian, Norwegian, Portuguese, Romanian, Slovak, Spanish, Swedish and Turkish

IF Survey: What does ageing with SBH mean to you?

Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!

IF advocates for birth registration at 12th COSP

On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.