23 June 2022
IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.
28 February 2022
On February 16 2022, International Federation for Spina Bifida and Hydrocephalus (IF) organized the side event Advancing Disability Rights Through Multidisciplinary Care as part of the Global Disability Summit 2022.
12 January 2022
On December 15 2021 the inauguration of the European Commission Disability Platform took place as promised in the European Union Strategy for the Rights of Persons with Disabilities (ESRPD).
15 December 2021
On November 8th, 9th, 15th and 16th, The International Federation for Spina Bifida and Hydrocephalus gave the “IF Human Rights and Advocacy Training - Accessibility in Focus”
3 December 2021
Today on December 3rd, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Day of Persons with Disabilities (IDPD). The United Nations General Assembly declared this day in 1992 (by resolution 47/3) with the goal to promote the rights and well-being of people with disabilities in all aspects of society and development, as well as to raise awareness about their position in political, social, economic, and cultural life.
2 December 2021
The European Commission together with the European Disability Forum organise a conference for the European Day of Persons with Disabilities. Held on 2-3 December, the 2021 European Day of Persons with Disabilities focuses on the topics of access to healthcare and digital transformation.
12 October 2021
The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is extremely important for IF and the global SBH community. Within it the indisputable rights of persons with disabilities are enshrined to which all States Parties to the UNCRPD commit to protect and advance.
29 July 2021
The International Federation for Spina Bifida and Hydrocephalus (IF) is an active member of the Coalition to Protect The Right to Family Life for All Children. In 2019 the Coalition published a statement on the right to family of children without parental care.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
