6 December 2023
In an upcoming statement, IF calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis. According to the Office of the High Commissioner for Human Rights (OHCHR), a humanitarian crisis includes man-made conflict, natural disasters or pandemics – or all of them. This raises concerns on human-rights and exacerbate pre-existing human rights vulnerabilities, especially for persons with disabilities.
16 September 2023
On September 16 2023, IF youth member LauraRosillo Beneyto represented the global disability community on behalf of IF and IDA at the youth pillar "Torchbearers for the SDGs: Meaningful Youth Engagement & the 2030 Agenda" during the SDG Action Weekend as part of the SDG Summit at the UN Headquarter in New York. Re-watch the speech by Laura here!
5 May 2023
The IF International Youth Group SBH was present during the Independent Living Day at the European Parliament, Brussels. An important day to raise awareness on the topic of independent living: “Every person has the right to live where he wants, with whom he wants. Everyone has the right to manage his own life” - Kateryna Shcherbyna.
23 April 2023
On April 21, 2023, the International Federation for Spina Bifida and Hydrocephalus held its spring webinar titled "Women with Disabilities in Conflict and Crisis" with the aim of better understanding the risks and vulnerabilities faced by women in conflicts and crises as well as the opportunities and resources available to support women and girls with disabilities who are impacted by conflicts and crises.
2 November 2022
The International Federation for Spina Bifida and Hydrocephalus (IF) is looking forward to celebrating the upcoming awareness days: International Day of Persons with Disabilities (IDPD) and the European Day of Persons with Disabilities (EDPD).
1 September 2022
With a new IF statement, The International Federation for Spina Bifida and Hydrocephalus (IF) is calling for urgent action demanding universal mandatory food fortification with vitamin B9 (folic acid) to reduce the risk of Spina Bifida, Anencephaly, or Encephalocele, also called Neural Tube Defects (NTDs).
17 August 2022
On August 11 2022, The IF International Youth SBH Meeting: Independent Living in Your Eyes was organised by the IF International Youth Group SBH.
7 July 2022
The Committee on the Rights of Persons with Disabilities (CRPD) opened a call for submissions in June 2022. The call was for comments and suggested amendments to the ‘Draft Guidelines on Deinstitutionalization, including in emergencies’.
7 July 2022
On the 17th of June IF attended the launch event of the WHO World Mental Health Report: Transforming Mental Health for All. Mental health is a vital aspect of wellbeing for everyone but it is topic which is faces stigma and discrimination, lack of investment and prioritisation by health systems. This is particularly true for persons with disabilities, a problem which youth with Spina Bifida and Hydrocephalus have been raising awareness of through the activities of IF’s International Youth Group.
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