World Spina Bifida and Hydrocephalus Day: Get ready to take action

25 October 2026
Online
This year, World Spina Bifida and Hydrocephalus Day invites the global SBH community to reflect on “A Lifetime of Experiences: From Preconception to Ageing”, recognising that every person’s journey with Spina Bifida and Hydrocephalus is unique and shaped by different experiences, opportunities, and challenges throughout life. From early diagnosis and childhood, to education, employment, relationships, healthcare, and ageing, the campaign will highlight the importance of lifelong support, inclusion, and the voices of people with lived experience.

The official WSBHD 2026 campaign toolkit is now available!

Designed to support IF members, partners, and community advocates in preparing for the campaign, the toolkit includes:

  • Social media materials and visual assets
  • Key messages and campaign information
  • Resources to help raise awareness within your community

Download the IF toolkit here:​

Join us on 25 October 2026 for IF’s annual World Spina Bifida and Hydrocephalus Day Online Conference.

Each year, this online event brings together persons with Spina Bifida and Hydrocephalus, member organisations, healthcare professionals, researchers, and advocates from around the world to mark World SBH Day and explore the year’s campaign theme. In 2026, the event will focus on “A Lifetime of Experiences: From Preconception to Aging”, highlighting the diverse experiences of the SBH community across all stages of life.

Further details, including speakers and registration information, will be announced soon through the IF and WSBHD websites and social media channels.

Support our organisation through a donation

Every contribution—big or small—makes a difference!