World Spina Bifida and Hydrocephalus Day: Get ready to take action

25 October 2026
Online
This year, World Spina Bifida and Hydrocephalus Day invites the global SBH community to reflect on “A Lifetime of Experiences: From Preconception to Ageing”, recognising that every person’s journey with Spina Bifida and Hydrocephalus is unique and shaped by different experiences, opportunities, and challenges throughout life. From early diagnosis and childhood, to education, employment, relationships, healthcare, and ageing, the campaign will highlight the importance of lifelong support, inclusion, and the voices of people with lived experience.

The official WSBHD 2026 campaign toolkit is now available!

Designed to support IF members, partners, and community advocates in preparing for the campaign, the toolkit includes:

  • Social media materials and visual assets
  • Key messages and campaign information
  • Resources to help raise awareness within your community

Download the IF toolkit here:​

Join us on 25 October 2026 for IF’s annual World Spina Bifida and Hydrocephalus Day Online Conference.

OUR RIGHTS. OUR VOICES. OUR FUTURE.
WSBHD · Disability Rights · Accessibility · Health Equity · Inclusion

Join us for the global celebration of World Spina Bifida and Hydrocephalus Day 2026, bringing the conversation from the International Conference on Spina Bifida and Hydrocephalus in Montreal to the wider global SBH community.

Featuring speakers and perspectives from around the world, the webinar will explore this year’s theme, “A Lifetime of Experiences: From Preconception to Aging”, and highlight the diverse experiences, priorities and challenges of people with Spina Bifida and Hydrocephalus across the life course.

Register here: bit.ly/WSBHD26-Conference

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