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Now that the European Work-Life Balance Directive has been finally adopted by the Council of the European Union, it's time for Member States to move towards its swift transposition. Why is it important for people with SBH?

During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.

IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).

Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.

People born with spina bifida and hydrocephalus are at risk of accelerated ageing and need to be protected against financial hardship and institutionalisation

This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!