Latest news

From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care.  Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community. 

The World Spina Bifida and Hydrocephalus Day 2021 is around the corner! IF welcomes October 2021 as an awareness month during which various events and activities will take place around the World Spina Bifida and Hydrocephalus Day (WSBHD).

The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is extremely important for IF and the global SBH community. Within it the indisputable rights of persons with disabilities are enshrined to which all States Parties to the UNCRPD commit to protect and advance. 

The first online IF international Conference on multidisciplinary Care for Spina Bifida and Hydrocephalus taking place from September 14 to 17 2021 was a great success.

IF has published a statement outlining its recommendations to the EU institutions, Member State governments and IF Member Associations for the effective implementation of the European Union Strategy for the Rights of Persons with Disabilities.

On 7th of December 2020 IF was joined by the European Disability Forum, the European Network for Independent Living and MEP Stelios Kympouropoulos for an online event on disability rights and sexual health.