Latest news

IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally

During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.

IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).

On 18-19 May, IF was in Belgrade for its first European workshop of 2019. Prevention, human rights, sexuality and ageing with SBH were some of the topics addressed during this intensive workshop!

We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age!

The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard!