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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Women's Health Wednesday

Make sure to follow our social media and take part in the IFGPI's Women's Health Wednesday polls that are posted each week with topics on prevention!

IF's Bulgarian member at the CRPD Committee members

On September 3 Slaveya Kostadinova, president of SBHB, presented the most serious difficulties that Bulgarian children living with spina bifida and hydrocephalus face to the UNCRPD Committee members.

Rebecca Alitsi, former IF fellow, co-facilitator at IDA’s workshop

Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.

IF Award at the 28th International Conference on SBH in India!

Congratulations to Dr. G.D. Agrawal, founder of the company Surgiwear in India, which produces the Chhabra shunt for the treatment of Hydrocephalus!

SBH Ireland launches The Fight of Our Lives film

IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.

Update for WSBHD18

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.

IF's Annual Report 2017 is out now!

The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.

UK hosts first ever Global Disability Summit

On 24 July 2018 the UK government, through its Department for International Development (UK DFID), will co-host its first ever Global Disability Summit with the International Disability Alliance (IDA) and the Government of Kenya.

IF’s statement at the 11th Conference of States Parties to the CRPD

IF General Secretary made a statement at the 11th session of the Conference of the States Parties (COSP) to the Committee on the Rights of Persons with Disabilities (CRPD).