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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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"My Rights" training in Lisbon

This Friday IF is going to Lisbon for a youth training called "My Rights: independent living, activism and participation for young people with spina bifida and/or hydrocephalus"!

We need a strong European Accessibility Act and we need it now!

The European Commission’s proposal for a European Accessibility Act was published in 2015. We are tired of waiting for its adoption!

WSBHD18 social media toolkit

Check out our World Spina Bifida and Hydrocephalus Day 2018 social media toolkit to learn how you can help to raise awareness on October 25!

Women's Health Wednesday

Make sure to follow our social media and take part in the IFGPI's Women's Health Wednesday polls that are posted each week with topics on prevention!

IF's Bulgarian member at the CRPD Committee members

On September 3 Slaveya Kostadinova, president of SBHB, presented the most serious difficulties that Bulgarian children living with spina bifida and hydrocephalus face to the UNCRPD Committee members.

Rebecca Alitsi, former IF fellow, co-facilitator at IDA’s workshop

Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.

IF Award at the 28th International Conference on SBH in India!

Congratulations to Dr. G.D. Agrawal, founder of the company Surgiwear in India, which produces the Chhabra shunt for the treatment of Hydrocephalus!

SBH Ireland launches The Fight of Our Lives film

IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.

Update for WSBHD18

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.