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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Report IF EU Workshop in Ghent

The second IF EU Workshop of 2019 took place in Ghent on 25-26 October, where we could celebrate the WSBHD together with our members. Read here about the main topic of the event!

New members and Board members at IF

IF welcomes two new Board members and three new IF members from Malawi, Uganda and Kazakhstan. Now we count with 68 members at the IF's family!

WSBHD 2019 #TheFullPicture campaign

On October 25 we celebrate World Spina Bifida and Hydrocephalus Day with the aim of raising awareness, improving understanding about Spina Bifida and Hydrocephalus, and advocating for the rights of persons with these conditions

Report on IF & ASBI International Youth Conference on Sexuality

Take a look to what was discussed at the International Youth Conference on Sexuality. We did break taboos!

IF responds to UN Special Rapporteur questionnaire on bioethics and disability

IF describes how the negative perception of disability has influenced strategies and policies related to prenatal screening, abortion and euthanasia

We call on the European Commission to move Disability Unit to the Secretariat-General

To ensure that disability will be mainstreamed in all EU policies, the Disability Unit should be moved to the Secretariat-General. Read our open letter!

IF analysis on the new European Commission

IF has developed an analysis on which new commissioners are key for the spina bifida and hydrocephalus community. Take a look!

IF joins EDF statement on passengers' rights

IF is one of the more than 200 partners that have signed the EDF's statement on the needs and rights of passengers with reduced mobility.

Report on 'My Rights' training in Estonia

The 4th edition of 'My Rights' training took place in August in Estonia, read the report to know more!