25 May 2022
The International Federation for Spina Bifida and Hydrocephalus (IF) together with partners from international organisations, medical and academic institutes are leading a campaign for a global action on preventable birth defects. Food fortification with folic acid is urgently needed to achieve the objectives of the 2010 World Health Assembly Resolution on Birth Defects and achieve the sustainable development goals (SDGs).
16 May 2022
Recognizing the 63rd World Health Assembly’s Resolution on Birth Defects that appealed to member states to prioritize prevention of birth defects, we are concerned by the high number of pregnancies affected by folic acid-preventable spina bifida and anencephaly globally. The International Federation for Spina Bifida and Hydrocephalus together with GAPSBiF and G4Alliance work together to promote WHA Resolution for Folic Acid Fortification for Spina Bifida.
16 March 2022
IF invites you to attend and present your work during the upcoming 29th International Conference on Spina Bifida and Hydrocephalus. Not only the Conference is organised in order to share interests and updates from the national researchers around the world, but it will also cover different sessions on different topics relevant to IF Members such as urology, ageing, sexual health, and mental health.
3 March 2022
On February 25 2022, the IF International Youth Group held a Meet & Greet with Vangelis Koutalianos, a true motivational speaker born with Spina Bifida. During this event, young participants had a chance to listen and chat with Vangelis Koutalianos. He shared with all the participants lots of interesting and inspiring life stories.
28 February 2022
On February 16 2022, International Federation for Spina Bifida and Hydrocephalus (IF) organized the side event Advancing Disability Rights Through Multidisciplinary Care as part of the Global Disability Summit 2022.
15 February 2022
Each year, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Women’s Day (#IWD) on March 8th 2022 together with our Global Community and IF Women Focus Group Discussions. We are calling YOU to join us, the activists, leaders, innovators and change-makers working every day to build an equal future.
15 February 2022
On March 3 2022, the International Federation for Spina Bifida and Hydrocephalus (IF) will join the world to celebrate the 7th edition of the World Birth Defects Day (WBDD) with the theme “Many births defects, one voice” as this day recognizes our collective voice in raising awareness for all birth defects.
13 January 2022
The IF President, Cato Lie, opened the event with a word of welcome and pointed out the importance of folic acid for healthy pregnancies and in the prevention of Neural Tube Defects (NTDs), in particular Spina Bifida and Hydrocephalus (SBH).
12 January 2022
On December 15 2021 the inauguration of the European Commission Disability Platform took place as promised in the European Union Strategy for the Rights of Persons with Disabilities (ESRPD).
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
