15 August 2023
Are you passionate about working with persons with Spina Bifida and Hydrocephalus, engaging with international stakeholders, writing articles and designing materials?
2 August 2023
Collaboration of the International Federation for Spina Bifida and Hydrocephalus with the European Association of Urology (EAU), ERN eUROGEN, and the ERN ITHACA on person centred paediatric urological guidelines for spina bifida. It is a unique collaboration whereby we actively involve persons with spina bifida and/or hydrocephalus and their families to improve the existing guidelines in making them more patient centred. In this way, the spina bifida and hydrocephalus community is actively involved in the development of this survey study from the beginning onwards.
30 June 2023
It is a real pleasure to share with you the third newsletter of the year 2023. With this newsletter, we, together with YOU, look back to an active first half year, especially with respect to IF General Meeting and several high level events such as the adoption of the WHA76.19 Resolution and the 16th Session of the Conference of States Parties to the CRPD.
9 June 2023
It is with great pleasure that we announce that The seventy-sixth World Health Assembly has voted to adopt the resolution WHA76.19 'Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification'. This is a tremendous achievement for the global SBH community.
29 May 2023
It is with great pleasure that we announce that The seventy-sixth World Health Assembly has voted to adopt the resolution “Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification”. This is a tremendous achievement for the global SBH community.
11 May 2023
Join IF in celebrating and raise awareness on the important draft WHA resolution for food fortification the government of Colombia is sponsoring alongside numerous co-sponsoring WHO Member States a side event to the WHA together with IF and a broad coalition of partners from public and civil society.
5 May 2023
The IF International Youth Group SBH was present during the Independent Living Day at the European Parliament, Brussels. An important day to raise awareness on the topic of independent living: “Every person has the right to live where he wants, with whom he wants. Everyone has the right to manage his own life” - Kateryna Shcherbyna.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
