Latest news

IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally

During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.

IF is very happy to announce that our Secretary General has been re-elected in the Boards of Directors of EURORDIS, which is now focusing on promoting holistic care for people living with rare diseases all over Europe.

Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.

This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!

It's such a great news to learn that Elena Zappoli, who is IF Board member and President of APEBI, has been designated as Director of the National Observatory of Disability!