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On May 27 IF together with its partners organised an in-person WHA side event titled ‘Congenital Anomalies and Universal Health: Leaving No One Behind’. During this side event on May 27th, 2024 it was discussed what resources are needed to serve children born with congenital anomalies around the globe in need of lifelong care, and how to advocate with policymakers for their inclusion in the universal health coverage agenda.

During the WHA77 IF Secretary General discussed joint approaches to ensure social protection for food security and nutrition for all!

On November 6 2023, Dr Sylvia Roozen - Secretary General of the International Federation for Spina Bifida and Hydrocephalus emphasised in her keynote address the important role ICBDSR members have on surveillance research to inform NTD Prevention & Care.

On July 15, 2022, IF held an experience exchange and sharing webinar named ‘IF webinar Learning from Experience: Strategic Advocacy for Primary Prevention’. The webinar was an experience exchange and twinning opportunity for all IF members, in which representatives from Africa, Asia-Pacific, Latin-America and Europe who have advanced their national advocacy for primary prevention shared their key element of success, the process, lessons learned and advice for all participants.

The IF members training “From local to global - how to influence international actions through national advocacy” taking place on May 6 2022 provided an overview of key concepts and processes of international organisations.

IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.