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During this year's World Spina Bifida and Hydrocephalus Day (WSBHD) on 25 October, we brought further awareness as to how we can bridge the gaps for our global SBH community. For the first time we were able to organise a meeting in a hybrid way with 350 participants from 30 countries attending our conference in Malaysia in person, and 32  joining our conference webinar online.

We are thrilled to welcome you soon to the 30th International Conference on Spina Bifida and Hydrocephalus! The local organisers of this event, the Spina Bifida and Hydrocephalus Association of Malaysia (SIBIAM) providing you with an ambitious program as part of our 30th anniversary International Conference on Spina Bifida and Hydrocephalus in the beautiful city of Petaling Jaya, Selangor taking place from 24 to 26 October 2024. Have a look at the 30th International Conference Programme Book and we hope you have an incredible and memorable time at this conference.

IF organised a 'Meet and Greet' meeting in May 2024 to facilitate a collaborative discussion between members of the IF International Youth Group SBH and the IF Working Group on Ageing with SBH.

On July 15, 2022, IF held an experience exchange and sharing webinar named ‘IF webinar Learning from Experience: Strategic Advocacy for Primary Prevention’. The webinar was an experience exchange and twinning opportunity for all IF members, in which representatives from Africa, Asia-Pacific, Latin-America and Europe who have advanced their national advocacy for primary prevention shared their key element of success, the process, lessons learned and advice for all participants.

The IF members training “From local to global - how to influence international actions through national advocacy” taking place on May 6 2022 provided an overview of key concepts and processes of international organisations.

IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.