16 April 2026
IF has launched a new African Youth Network Initiative, creating a platform for young people across Africa to connect, share experiences, and strengthen collaboration on issues affecting persons living with spina bifida and hydrocephalus.
6 March 2026
IF hosted its International Women’s Day webinar, bringing together women with disabilities, advocates, policy-makers, and allies from around the world. Guided by the UN theme “Rights. Justice. Action. For ALL Women and Girls”, the event offered a global platform to amplify lived experiences, explore systemic barriers, and showcase solutions for meaningful inclusion.
5 March 2026
IF hosted the first LATAM SBH Associations Meeting of the year, bringing together representatives from member organisations across Latin America. Participants joined from Guatemala, Argentina, Colombia, Chile, Paraguay, and Ecuador, alongside IF representatives, to exchange updates, share experiences, and explore opportunities for collaboration within the region.
3 March 2026
The 34th session of the UN Committee on the Rights of Persons with Disabilities is underway. Learn how SBH Associations can participate, submit shadow reports, and help shape disability rights implementation in their countries.
24 February 2026
IF held its first Members Meeting of 2026 on 24 February, welcoming 43 members from across its global network. The meeting offered a platform to reflect on 2025 achievements, share national initiatives, and define priorities for the year ahead.
1 February 2026
The European Commission is reviewing and strengthening the EU Strategy for the Rights of Persons with Disabilities, looking ahead to 2030. This is a unique opportunity for persons with disabilities, their families, and organisations like ours to shape the policies that affect our lives.
17 January 2026
This week in Bangkok, Thailand, IF President is taking part in the International Disability Alliance (IDA) General Assembly, a key global forum for advancing the rights of persons with disabilities.
1 March 2025
IF has recently joined the Rare Diseases International Coalition in support of the adoption of the WHA Resolution on Rare Diseases, which will be discussed at the World Health Assembly (WHA) in May 2025.
31 October 2024
The 30th International Conference on Spina Bifida and Hydrocephalus took place from October 24 to 26 in Kuala Lumpur Malaysia. Together, we discussed strategies for adressing gaps in healthcare and prevention, while promoting a multidisciplinary approach that places our community at its core. Our heartfelt congratulations to SiBIAM as hosting association. This conference was a starting point for future meetings whereby we continue building bridges together!
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
