Latest news

IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally

IF is happy to publish its 2018 Annual Report, featuring IF activities and projects which were only made possible thanks to the collaboration of our members, partners and friends all over the world. 

Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!

Now that the European Work-Life Balance Directive has been finally adopted by the Council of the European Union, it's time for Member States to move towards its swift transposition. Why is it important for people with SBH?

During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.

IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).