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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Accessibility Act Demonstration

IF joined the demonstration organized by the European Disability Forum in Brussels calling for an strong and ambitious European Accessibility Act

UN CRPD Advocacy Training Course for young people

Young people with Spina Bifida and Hydrocephalus came together in Dublin to learn more about disability rights

What's our next Turning Point? The Global Prevention Initiative!

During the past three days Ghent hosted almost 300 participants of the Turning Points Conference. It was already the 27th International Conference on Spina Bifida and Hydrocephalus. The debates were very innovative, frank and sometimes emotional. One of the highlights of this weekend was the official launch by HRH Princess Astrid of Belgium of the first Global Prevention Initiative.

European IF members priorities: Independent living, right to life and ageing with spina bifida

The  first European workshop of 2016 took place on 18-19 June in Budapest, Hungary. IF members from 17 European countries came together to discuss their working priorities and to give the IF secretariat guidance for its 2017 activities.

Co-organised Equality 2015 conference: improving care and prevention for Spina Bifida and Hydrocephalus

The two-day International Conference on Spina Bifida and Hydrocephalus, Equality, organised by the International Federation for Spina Bifida and Hydrocephalus (IF) together with the Associazione Spina Bifida Italia (ASBI), will be held from 16 to 18 October 2015 in Solbiate Olona, Italy.

European IF members discuss right to health and cross-border networking between associations

This year's first IF European workshop took place on 3-4 July in Vilnius, Lithuania. IF members from 15 European countries came together to discuss their working priorities and to give the IF secretariat guidance for its 2016 activities.

From the new LATAM network for spina bifida and hydrocephalus: Genetic factors and social inclusion are fundamental worldwide!

During last two days Buenos Aires was filled with discussions on key topics for the Spina Bifida and Hydrocephalus (SBH) global community. Genetic factors of SBH, social inclusion, and the right to health were at the top of the agenda.

IF's 24th International Congress 2013: Unite & Share

IF’s 24th International conference “Unite & Share” that took place in Izmir on 28 and 29 June was a great success and was well-attended by representatives of IF member organisations and local people engaged in the field of Spina Bifida and Hydrocephalus.

IF Workshop “Adults, and now?”

IF organised a Capacity Building Workshop “Adults, and now?” for Disabled People Organisations of persons with Spina Bifida and Hydrocephalus at the European Parliament in Strasbourg