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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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First woman with a disability elected for the UN CEDAW Committee

Ana Paláez Narváez is the first woman with disabilities elected for the UN Committee on the Elimination of Discrimination against Women (CEDAW).

Continence management high on the agenda at IF European Workshop in Bulgaria

European IF members came together in Sofia, Bulgaria, to discuss their priorities, achievements and concerns and receive the latest update on IF's plans and activities.

BethanyKids’ Mobile Clinic in Kenya helps thousands of children with disabilities

To learn how the BethanyKids' Mobile Clinic operates in Kenya, you can now watch a short video documentary.

Training in Uganda on the CRPD and SDGs for persons with disabilities

IF fellow Rebecca Opetsi joined the so called Bridge CRPD-SDG training in Kampala, Uganda, to become a lead trainer herself.

Register now for the 28th International Conference on Spina Bifida and Hydrocephalus!

Join us in New Delhi, India, for the 28th International Conference on Spina Bifida and Hydrocephalus!

Comic book features young woman with Spina Bifida

Léa first showed in a documentary that travelling by public transport can be a challenge when using a wheelchair. Now she does this as a comic book's main character!

Folate status in women and neural tube defect risk reduction

Free access to 10 scientific studies by renowned experts that can support you in your advocacy efforts to reduce the risk of neural tube defects!

IF expresses concerns in response to UNICEF Report: “Every Child ALIVE”

The rights of newborns with birth defects and disabilities need to be protected too, to safeguard their lives and offer them the opportunity to thrive.

IF response to the Special Rapporteur on the rights of persons with disabilities

What does it take for persons with Spina Bifida and Hydrocephalus to reach the highest attainable standard of health?