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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Update for WSBHD18

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.

IF's Annual Report 2017 is out now!

The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.

UK hosts first ever Global Disability Summit

On 24 July 2018 the UK government, through its Department for International Development (UK DFID), will co-host its first ever Global Disability Summit with the International Disability Alliance (IDA) and the Government of Kenya.

IF’s statement at the 11th Conference of States Parties to the CRPD

IF General Secretary made a statement at the 11th session of the Conference of the States Parties (COSP) to the Committee on the Rights of Persons with Disabilities (CRPD).

First woman with a disability elected for the UN CEDAW Committee

Ana Paláez Narváez is the first woman with disabilities elected for the UN Committee on the Elimination of Discrimination against Women (CEDAW).

Continence management high on the agenda at IF European Workshop in Bulgaria

European IF members came together in Sofia, Bulgaria, to discuss their priorities, achievements and concerns and receive the latest update on IF's plans and activities.

BethanyKids’ Mobile Clinic in Kenya helps thousands of children with disabilities

To learn how the BethanyKids' Mobile Clinic operates in Kenya, you can now watch a short video documentary.

Training in Uganda on the CRPD and SDGs for persons with disabilities

IF fellow Rebecca Opetsi joined the so called Bridge CRPD-SDG training in Kampala, Uganda, to become a lead trainer herself.

Register now for the 28th International Conference on Spina Bifida and Hydrocephalus!

Join us in New Delhi, India, for the 28th International Conference on Spina Bifida and Hydrocephalus!